I think it’s coming back :(
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Re: I think it’s coming back :(
Thanks Roy! I kept thinking it was an PI-IBS flare up or something. But who knows. My stomach is definitely still not back to normal, but no D as of now. Hopefully it stays this way!
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Re: I think it’s coming back :(
What type of test did you have that was positive? If it was only PCR, then you should ask about confirming an active infection with EIA testing. I tested positive for c diff after a hospital stay for 2.5 years, but my EIA was negative, meaning it was not an active infection. For the most part I was C, but would have days with flares and GI symptoms. I did not treat. Only took Pepto as needed. The hospital lab now sends all positive PCR tests for EIA and if that is negative, they classify it as a negative result. Don't overtreat. I have a bottle of Dificid here in case need arises and I take it with me when I travel. I hope I never need it. The expiration date is usually a couple of years down the road, so wait til you talk to the ID.
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Re: I think it’s coming back :(
Thanks Beth! That’s actually a very important point I forgot to mention. My family doc and GI doc told me the test they did was checking for active infection. When I showed my friend that’s an ID doc the test results, all 3 were PCR. That’s also why he said he wouldn’t treat if there were no true symptoms present. So far, I’m still taking pepto. I went twice yesterday (I’m usually on the C side) however, no D, only soft stool. My friend was a little surprised I’m still going while on pepto, but he also said pepto shouldn’t slow symptoms of a true full c diff infection. I will post once I get back from my ID appt tomorrow.
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Re: I think it’s coming back :(
Actually, Beth, I believe you went to Hawaii or another trip while you had some symptoms but I think you took pepto? (Sorry if I’m mixing you up with someone else or mixed up the details). Did you go into the pool while on your trip? I obviously wouldn’t go into the pool if I had active symptoms, but just curious as to what I should be cautious of.
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Re: I think it’s coming back :(
I just searched "pool" and found a bunch of information on the topic. I should ave done that to begin with!
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Re: I think it’s coming back :(
I just wanted to close the loop since I saw my ID doctor. The last test my PCP did test for active toxin, but I was a little confused by the results. It says GDH antigen detected, Toxin A and B not detected, and PCR was positive. My Dr said this doesn't rule out active infection but was happy to see Toxin A and B not detected. Since I am improving with pepto to stick to that for now and if anything gets worse then to contact him and I would try the Dificid after testing. So far, I am still doing better with the pepto. I've been taking a little bit less lately, but sticking to a bland diet. Hopefully I'm ok this time.
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