Hi
I have C diff from April 2017. 49 years old.
I got very seek during Ester time and, end up in the hospital, send home with IBS diagnostic. Next day my husband insisted to go bag and ask for other ER . DR I was diagnosed with this burden ugly disease. During hospital stay many diagnosis - mass tumor malignancy with mets to pelvic lymph. One infectious disease DR came and talked to me and told me no cancer it is a big inflammation / abscess of c diff colitis. i was send home with medication metronidazole, not a good medication for my body. Infectious disease Dr change it to Vancomycin .-125 4 time / day. I was ok for 3 weeks during Vanco, no side effects, Follow up CT was almost resolution of my inflammation colon, colonoscopy the same. After 3 weeks vanco i relapsed and Dr change my treatment with Faxomycid. Again i relapsed so Vanco again, in the mine time i was looking for a transplant FMT- My town has Mayo and B.G.- Fast was the BG one and i did the colonoscopy - Open Bio. I relapsed after 7 weeks. I lost 12 ponds with the start of c diff, no hops, no dreams, I work in the hospital i do not know how i got it. ( no direct patient contact) Lately vanco is not responding very well gas, pain nausea . no diarrhea but going like 4 time in the morning. Dr change my Vanco to 250 4 time/day. Still the same I need help. I take Florastol , i stop thinking gas is due probiotic. .
Please excuse my gram- English second language. Thank you.
Amazing help with this web.
Vancomycin
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Re: Vancomycin
Hello Lid49 and Welcome to the site Please read the first thread for all new posters
It sounds like you have been through a lot! First if you work in a hospital even without patient care you are at risk. I also work in a hospital and take extra precautions.
After your FMY did you test positive again? It's not clear if you actually tested positive or have had severe watery diarrhea that has continued. Many of us get Post IBS and symptoms can be all over the place. If you still have diarrhea and symptoms on Vanco I would go over this with your GI or ID or BOTH at this point. The one thing I would consider IF you actually still have CDIFF is a Difcid taper. It is the one thing that did work for me and many other's on the site.
My concern is if you are still dealing with CDIFF. I would review with both ID and GI
NanciT
It sounds like you have been through a lot! First if you work in a hospital even without patient care you are at risk. I also work in a hospital and take extra precautions.
After your FMY did you test positive again? It's not clear if you actually tested positive or have had severe watery diarrhea that has continued. Many of us get Post IBS and symptoms can be all over the place. If you still have diarrhea and symptoms on Vanco I would go over this with your GI or ID or BOTH at this point. The one thing I would consider IF you actually still have CDIFF is a Difcid taper. It is the one thing that did work for me and many other's on the site.
My concern is if you are still dealing with CDIFF. I would review with both ID and GI
NanciT
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Re: Vancomycin
Yes test positive cdiff start Vanco like I was mentioning. GI was the Dr how did FMT. I have the ID Dr taking care of the cdiff. I will probably call. She increase vanco 6 days ago to 250/4 time a day. Very depressing. No D, but gas pain nausea . Thank you for quick response.
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Re: Vancomycin
I did not do well on vanco. It gave me nausea, gas and pain too. I had FMT, but I had to have more than one. Maybe if you tried a Dificid taper and if does not work, another FMT.
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Re: Vancomycin
Yes that will be my next move. I have an appointment at Mayo clinic for my next FMT. I was hoping that vanco will help.Thank you so much .
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Re: Vancomycin
Before FMT you need to take an antibiotic anyway, so it may as well be vanco.
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Re: Vancomycin
Hi
Went to the Dr. Next is fresh donner FMT. After Vanco taper. I have good days and bad days on Vancomycin.
Afraid to eat. Nausea pain gas. Is this normal?
. 250 vanco 4 times per day
Thank you.
Went to the Dr. Next is fresh donner FMT. After Vanco taper. I have good days and bad days on Vancomycin.
Afraid to eat. Nausea pain gas. Is this normal?
. 250 vanco 4 times per day
Thank you.
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Re: Vancomycin
You need to discuss your treatment with your Dr.
If you have not had D for a long while you might be overtreating.
If you have not had D for a long while you might be overtreating.
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Re: Vancomycin
Can vancomycin give you stif neck back pain?
Thank you.
Thank you.
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Re: Vancomycin
No.
But check with your Dr.
But check with your Dr.
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Re: Vancomycin
Thank you, I call today ,will be curious to find out.
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Re: Vancomycin
Don't think so. You must get that pain checked , it may be spondylosis or something else!
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Re: Vancomycin
I was yesterday to see the Dr. I ask , they say probable no.. The problem is that I'm so drained not able to eat, and so depress. The nausea is increasing. I lost 12 pound. Dr. think is IBS on top of Cdiff.
Thank you Georgina. I'm also from Romania married and have a 19 years old daughter.
Thank you Georgina. I'm also from Romania married and have a 19 years old daughter.
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Re: Vancomycin
Lid49' so glad you and Georgina found each other! Know she will reasssure you as she is positive, knowledgeable, and caring. Extra comforting as you are both from Romania.
Welcome to you. A number of our posters have done well at Mayo. I am sure you will, too.
Keep us posted.
Welcome to you. A number of our posters have done well at Mayo. I am sure you will, too.
Keep us posted.
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Re: Vancomycin
Wow , what a lucky coincidence!!
Lid you are very lucky girl , Mayo clinic is one of the best places to treat relapsing Cdiff . Glad you are not stuck in Romania (like me) otherwise it would have been very hard to get a knowledgeble doctor to look after you. Hope the FMT will do the trick. Be free to PM me anytime!
Lid you are very lucky girl , Mayo clinic is one of the best places to treat relapsing Cdiff . Glad you are not stuck in Romania (like me) otherwise it would have been very hard to get a knowledgeble doctor to look after you. Hope the FMT will do the trick. Be free to PM me anytime!
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