5th Time with C Diff

For posting new case histories and updates to histories only. Do not post general messages, replies or questions here.
ndlanier
Brand New Poster
Posts: 2
Joined: Thu Feb 01, 2018 10:34 pm

5th Time with C Diff

Postby ndlanier » Fri Feb 02, 2018 12:05 am

I was initially diagnosed in the summer of 2015. Was immediately put on Flagyll (freaking hate that stuff). I then relapsed the following June was put on one more round of Flagyll but this was a bad idea (I'll explain in a bit). I then relapsed in October 2016, and was put on my first set of Vanco. I then relapsed again in June of 2017 and well ugg let me merge this into my GP issues...

August 2015 - No issues with my Doctor other than it took 1 hour to get back into a room, and then 2 hours to actually see the doctor... Says I shouldn't go see a specialist yet. Fair it's the first time getting it so I get it.

June 2016 - No initial issues other than still didn't advise to go see a specialist.

August 2016 - Not a relapse but found out my doctor was moving out of no where. He left with two weeks notice... The practice has not replaced him which leaves one Doctor and a PA.

October 2016 - Saw the PA. Relapsed and missed a week of my last semester of college and a week of work with my first round of Vanco. Fun fact she said that my previous Doctor shouldn't have prescribed Flagyll because the stool sample he ran then was Flagyll resistant. So my faith in this practice has dwindled some but I feel comfortable with the PA but didn't really want me to go see a specialist yet.

June 2017 - Relapsed, called the Practice and they immediately issued a stool sample kit and then went the PA went ahead an prescribed Flagyll. Wait what??? So I called the practice back and got a hold of the nurse and stated my history and why I thought Flagyll was a bad idea. The PA got back to me and said to take the Flagyll. I'm not trained in the field so I trust her decision. I knew better. A couple of days later had a follow up with the PA. My wife and I restated our concern with the Flagyll prescription and she said you could always call and let me know or ask. What the heck!? WE DID! I really pressed the nurses my history on this and you said take the Flagyll!!!!!!!! I told her we did. She got nervous. Before both the previous doctor and this PA were not advising a referral to a specialist. I then demanded we be referred to a GI of our choosing. My wife's best friend who's husband got C Diff after being poisoned by an ex went to this guy and was cured and hasn't had a relapse or reoccurrence, so we got referred to his GI. The PA then put me back on Vanco.

July 2017 - Out of work here and there from episodes of fatigue and nasseua. Had initial appointment with the GI. Told him my story so far. He schedules a Colonoscopy and EGD in the middle of August. He also advised I find a new GP. On another note, I was going to go to a big LAN party but couldn't. I fainted right before I was going to start loading up my stuff. Had to cancel on my friends.

August 2017 - Fatigue has hit me freaking hard. I went from being able to walk miles before this relapse to being barely able to walk to the post office to get the mail (it's right around the corner). Fainted at my sister's birthday party (I had started my prepping for my colonoscopy was really exhausted from not having a lot of food in me). Had my colonoscopy and EGD. A couple of days later, got a 2mm kidnestone (took two weeks to pass btw). Went to the ER for the stone. Then got a huge impacted stool from the Oxycodone for the stone. It took two days to pass and I definitely had a fissure. Obviously was out of work still.

September 2017 - Passed the stone (ouch and definitely wasn't 2mm lol), bowel healed. Returned to work. HR advised I file for FMLA to recover some of my lost wages while I was out for a month and a half, they said that my situation fit the qualifications for FMLA. My GP refused to sign it on the grounds everything was a separate set issues (even though they were a chain of events...) Had my follow up with my GI, he said the the GP had to sign the FMLA paperwork unfortunately. He did say it's odd that they wouldn't because several of his patience have gone through with FMLA and that maybe she's trying to dodge any legal document that could be used against her and the practice for malpractice with the mis-prescribed Flagyll those two times. In other news, the GI said that he saw no signs of colitis from the colonoscopy, and no signs of a C Diff infection either... So apparently the bowel prep meds flushed it all out.

December 2017 - Got another Kidney Stone :( 3mm. Sigh... Didn't pass it this month

January 2018 - In the middle of the month the stone moved and started really hurting. Had urgent laser lithotripsy 4 days later and they put a urinary stint in. Kidney was infected. I MADE SURE TO TELL MY UROLOGIST THAT I HAVE HAD C DIFF IN THE PAST AND THAT I SEE X FROM Y GASTROENTEROLOGY. Prescribed Bactrim because my kidney was infected but he said to keep an eye out on my stool. Made it through all of it without a loose stool.

This week (1/28 - 2/3) - Loose stool began on Sunday but didn't think much of it. I've been eating high fiber food and taking a stool softener to counteract the constipation effects of large amounts of Oxycodone I have had to take. Loose stools have continued and are flakey and there is a decent amount of bile and now mucus today. Had stint removed today (2/1) but let the urologist know about the loose stools. He only gave me one Bactrim to prevent further infection. He advised me to follow up with my GI. Went back to work towards the end of the work day felt like I had to go (would be my third time in the day so not bad) But after I wiped the smell was there. I know it's back. Immediately called my GI and they're going to have me come in and get a stool sample kit. I pray, I mean I'm praying like crazy for it to be the flu or something, or at least just a reoccurrence instead of relapse so I can beat it with vancomycin or something. It's really hard not to be stupid depressed about this. I know I need to keep a good attitude because some studies have linked depression to active c diff infections. Really scared. Starting to get queasy and fatigued and losing appetite already.


I really hope I can recover. I had to cancel my super bowl (go EAGLES!) get together. Which my best friend who I rarely see cause she works so much was going to be able to come, last time I saw her was in October but I had to cancel this because I'm just not confident in my stomach and I don't want to expose her. I honestly started crying while I was texting her because I miss her.

It's really hard to live life with this disease. There has to be a cure, there has to be. I'm going insane. If I get it one more time after this bought I almost don't want to have a job so I can go to different states and do trials and find other experimental treatments.

Return to “Case Histories and Updates”



Who is online

Users browsing this forum: No registered users and 10 guests