Vanco taper, update

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poppy86
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Re: Vanco taper, update

Postby poppy86 » Sat May 16, 2020 11:32 am

I got a sample of watery, bloody D, and I should be able to make it to the lab right before it closes, headed there now.

poppy86
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Re: Vanco taper, update

Postby poppy86 » Sun May 17, 2020 10:12 am

I'm waiting for my test results, they should be in within two hours. I'm having a really rough morning, already had 8 BMs so far today.

poppy86
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Re: Vanco taper, update

Postby poppy86 » Sun May 17, 2020 10:56 am

The result is negative :(. I don't know what to do. I'm waiting for another call from the on-call doctor. I've been having bloody D all day, with a negative result, how is this possible?

georgina
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Re: Vanco taper, update

Postby georgina » Sun May 17, 2020 11:26 am

It's possible that you might be dealing with something else along with Cdiff. You need to ask your doctor to test you for other conditions , like IBD (UC or Crohns ) .

Ali-Mar
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Re: Vanco taper, update

Postby Ali-Mar » Sun May 17, 2020 11:40 am

Poppy,
That is great news. The blood might be a fissure or hemorrhoid. And the D could be food that eat or the PI-IBS . What is your diet look like?
Didn't you drop off two samples ? Is it mean they will test twice? Can you test a 2nd time to confirm for piece of mind.

If it was PCR test, PCR is very accurate. Most test are very accurate except the EIA Toxin test

Testing sensitivity info:
https://www.health.state.mn.us/diseases ... sting.html
Male 54, contracted C-Diff on Feb 5, 2020, diagnosed on March 2nd, Took Flagyl for 8 days, Vanco for 10 days, relapsed 5 weeks post-Vanco. finished Dificid Taper on June 20 relapsed two weeks later, had the FMT on July 14th, 2020

poppy86
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Re: Vanco taper, update

Postby poppy86 » Sun May 17, 2020 12:16 pm

I'll speak with my regular doctor tomorrow. I only had one sample tested (the others were rejected). Today I got a negative result for GDH antigen-toxin EIA test.

Ali-Mar
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Re: Vanco taper, update

Postby Ali-Mar » Sun May 17, 2020 12:22 pm

That is really good, negative GDH Antigen means you are not even a C-Diff carrier ( colonized)!
Male 54, contracted C-Diff on Feb 5, 2020, diagnosed on March 2nd, Took Flagyl for 8 days, Vanco for 10 days, relapsed 5 weeks post-Vanco. finished Dificid Taper on June 20 relapsed two weeks later, had the FMT on July 14th, 2020

poppy86
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Re: Vanco taper, update

Postby poppy86 » Sun May 17, 2020 12:24 pm

But then why am I feeling so sick? :(

poppy86
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Re: Vanco taper, update

Postby poppy86 » Sun May 17, 2020 12:26 pm

I guess I'll need to be checked for inflammatory bowel disease, like colitis or Crohn's.

jG43
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Re: Vanco taper, update

Postby jG43 » Sun May 17, 2020 2:14 pm

Awesome news that the test was negative. You may have some bad post infectious ibs going on. I have internal hemorrhoids that will bleed quite a bit if I am going that much per day. I am 1.5 years out and I still have off days with d and some bleeding. From what I read on the site many have pi ibs that can cause almost identical symptoms as cdiff. Are you able to eat anything. It is possible you could have eaten some undercooked food or have some other type of stomach bug

poppy86
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Re: Vanco taper, update

Postby poppy86 » Sun May 17, 2020 2:25 pm

Thank you for your reply JG43. Part of me is wondering if it's PI-IBS. My doctor will hopefully have some information for me tomorrow.

I felt nauseous this morning but have been able to eat. I'm eating bland foods, rice, plain toast, banana, water, plain chicken. Nothing unusual. I'm just trying to get through the day right now, there's a lot of rumbling and gas going on, and many trips to the bathroom. I have lost 12 or so pounds since I was first diagnosed in late March. I'm very small already, under 5 feet tall, I can't afford to lose more weight.

poppy86
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Posts: 197
Joined: Sun Mar 29, 2020 10:23 pm

Re: Vanco taper, update

Postby poppy86 » Mon May 18, 2020 8:48 am

Just updating here - my doc is out of the office for a few days, but a nurse relayed the message to continue with my taper, and that I probably have PI-IBS with hemorrhoids. I hope that's what this is, and then I will work on managing the symptoms.

georgina
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Re: Vanco taper, update

Postby georgina » Mon May 18, 2020 10:27 am

If i were your doctor , the first thing i would test you for (since you are clear of Cdiff) is a calprotectin test . It's a simple stool test that can give very precious details about whatever is happening in your gut .

georgina
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Re: Vanco taper, update

Postby georgina » Mon May 18, 2020 10:28 am

Locking this thread because is getting too long. Feel free to start another one .


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