Fear of 2nd Relapse

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lunasdad
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Joined: Tue Jul 16, 2019 7:15 pm

Fear of 2nd Relapse

Postby lunasdad » Fri Aug 30, 2019 10:25 am

I have been posting on this site since early July. I completed my 2nd cycle of Vance last Wednesday for my first relapse of CDIFF. I was on vacation with my family and was feeling ok while on the Vanco. After coming home I turned around a went on a cross country business trip. I tried my best to eat safely and was feeling pretty good and hopeful that I was over this. I flew back last night and honestly was feeling very positive. This morning I woke up with severe body aches and feel completely tired and run down. I had 2 bouts of weird but not watery BM's so far this morning. Each bout of CDIFF I had began with what I call feeling fluish, similar to how I feel today. I am so tied of dealing with this. It has taken a large toll on my family and work life. I guess my hope is that I am just tired from travel BUT my mind always goes to the CDIFF being back again.

Bobbie
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Joined: Sat Aug 06, 2005 8:00 pm

Re: Fear of 2nd Relapse

Postby Bobbie » Thu Sep 05, 2019 12:43 pm

Many minds reach the same (and often erroneous) conclusion.

C diff has wrecked many lives. Don't let it wreck yours.

D1dad
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Joined: Tue Mar 12, 2019 8:34 pm

Re: Fear of 2nd Relapse

Postby D1dad » Fri Sep 06, 2019 9:36 am

Your gonna feel like hell for awhile even if you have beat it. It’s taken me 5 months to actually look at my wife and say “I feel great” no symptoms at all. Then I ate a red jalapeño from the garden and chased it down with tacos and hot sauce, literally died the next day. Called in sick to work. Just remember that the Vanco beat the sickness also destroyed the good guys in your gut, you literally took one of the strongest antibiotics on earth. Eat right, try and exercise for your immune system and the days and months will pass and you’ll be where I’m at. There is light, even though I dint see it when I was in your shoes.

Bobbie
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Joined: Sat Aug 06, 2005 8:00 pm

Re: Fear of 2nd Relapse

Postby Bobbie » Fri Sep 06, 2019 11:23 am

D1dad,

Well said.

D1dad
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Posts: 319
Joined: Tue Mar 12, 2019 8:34 pm

Re: Fear of 2nd Relapse

Postby D1dad » Sat Sep 21, 2019 10:48 am

Just checking in to see how your doing? Your story, job, travel and case are so close to mine. Hope your putting this in the rear view and getting better.

lunasdad
Regular User
Posts: 56
Joined: Tue Jul 16, 2019 7:15 pm

Re: Fear of 2nd Relapse

Postby lunasdad » Sun Sep 29, 2019 8:03 pm

Hi D1 Dad-

I’ve posted a few times in the forum since his one. I was feeling great for almost a month and this last week things took a turn. My stools started to get looser but I was going very little. Felt fluish and had real bad nausea all week and this morning had a wbm. But haven’t gone since. Really am not sure what to think at this point. I have work travel this week and planning on going. I spoke to a cdiff specialist this week and he said to take a stool test home and if it gets real bad I will need to take Dificid followed by an FMT.

Hope you are well.

D1dad
Regular Contributor
Posts: 319
Joined: Tue Mar 12, 2019 8:34 pm

Re: Fear of 2nd Relapse

Postby D1dad » Wed Oct 02, 2019 6:08 pm

I had weeks like that the first few months. Now at the 6 month point there’s very few unless I beer and hot wing it up. I thought I was relapsing so many times I lost count. Benefiber, protein powder and my ID doc suggested Zyrtec and that helped. I just really tried to focus on whether I was sick like I was with cdiff, or is just a bad day or even week. My doc said that the stomach flora can take up to 6 months to recover from antibiotics without cdiff so a year was a safe timeframe. I do eat lots of yogurt now which I never ate before and still alternate between florastor and pro 50 probiotics every other month, but really try not to overdo it as that was a lot of my problem early on. Days will turn into weeks and months and you’ll have the awful memories, but you’ll put this behind you.

lunasdad
Regular User
Posts: 56
Joined: Tue Jul 16, 2019 7:15 pm

Re: Fear of 2nd Relapse

Postby lunasdad » Wed Oct 02, 2019 9:56 pm

This week has been really rough. My stomach has been really bad and I am struggling with daily wbm, have had to work from home which I hate. Had to cancel a work trip. Today I started taking Imodium which I’ve tried to avoid to stop the wbm. Still waiting on my full stool test results but my EIA came back negative which seems to mean I do not have active cdiff. Really frustrated as I thought I was all better.

D1dad
Regular Contributor
Posts: 319
Joined: Tue Mar 12, 2019 8:34 pm

Re: Fear of 2nd Relapse

Postby D1dad » Sat Oct 05, 2019 7:27 am

Are you taking florastor? That by itself may help with the WBM. Try some benefiber to help firm things up. Great news on the test though. Your system is trying to recover and seems to be doing so. Keep the faith, it will get better.

chinacherry88
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Joined: Sun Feb 23, 2014 5:40 pm

Re: Fear of 2nd Relapse

Postby chinacherry88 » Sat Oct 05, 2019 8:40 am

Recovery is full of bumps. But believe me you will get back to normal sooner than expected.
At the end everybody does.
I had it 6 years ago and battled it for 4 months. I had a b*** month of recovery. Thought I will never make it and I did.
After that I've been healthier as ever-now fighting another superbug and pretty ill and nervous-.
I ran 5 miles a day. Being living in India eating a ton of spicy foods. Went to the states.
Please endure and follow the 3 day rule.


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