Tailbone Pain

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monajane
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Tailbone Pain

Postby monajane » Tue Oct 20, 2015 2:51 pm

I am a 48 year old female and have been fighting C'Diff since February. I went through a round of Flagyl, Vancocin and two rounds of Dificid. Last stool sample I tested negative for C'diff but I am still have issues, one of which is tailbone pain when I sit for periods of time. Has anyone else experienced this problem? I also have anal itching and aching, both of which I never had before C'diff, though I am supposedly cured. It is hard not feeling depressed because I feel like I will never get back to normal.

Lisa33
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Re: Tailbone Pain

Postby Lisa33 » Tue Oct 20, 2015 3:29 pm

STANDARD INTRODUCTION:
Welcome to the site. Read the first forum “All Users Read This First” and subtopics “Site History” and “Information and Guidelines for Posting to our Discussion Boards.” (Note limits on posting.) This will guide you in using the site and answer some of your questions. Read Dr. Borody's articles. Also see the topics under “CDI” – particularly Recent CDC Report, C. diff. Bible, Tests, Antibiotics, Hygiene, and Nutrition.
“Doctors” lists physicians our posters recommended and also a worldwide list of C. diff. specialists with contact information. (Many perform FMT's.) See the forum “FMT’s and FE’s” or “Media Reports” for new information on C. diff.
The majority of patients (about 70%) recover with one to two rounds of Flagyl, vancomycin, or Dificid. An unfortunate small percentage doesn’t and can suffer for months. Most recover unless there are factors such as advanced age or other severe health problems. New treatments include FMT's, which have a high cure rate. Other drugs and treatments are in the pipeline, and there is increased recognition of C. diff. 20l6 will be a year of many advances and HOPE.
Help us make others aware of C. difficle – which will lead to further advances in treating and/or preventing the infection. If antibiotics contributed to your C. diff, be careful about taking them. Some people tolerate them; some develop C. diff again. Don’t take medications for C. diff. unless you are tested.
For more information, see other support groups including http://www.peggyfoundation.org, Clostridium Difficile Infection (CDI) Support Group, FMT Discussion, Fecal Transplant Foundation, C Diff Foundation, and the UK Support Site. There is also information on some of the better medical sites like Mayo's, Medscape, and WebMD, and the CDC website. Don't use "Dr. Google" to diagnose yourself.
This is a support site not a medical site. We can’t give you medical advice but can tell you what worked for us and offer support. The best protection for you and others is thorough hand washing (soap and water are preferable) and good hygiene by you, those around you, and your health care providers.
No one will understand what you are going through except someone who has/had this unpredictable disease. All of our moderators and frequent posters had/have C. diff. (or a loved one with it) and know how physically, emotionally, and financially disabling it is.
Again, welcome. Remember, the odds are in your favor. (End of letter.)

Welcome to the site, but so sorry you had to endure c-diff. Recovery is hard for many and can also take quite some time to feel back to normal. It seems that the more rounds of treatment you had, the harder it is to get back to normal. However, recovery is a very individual experience. I experienced very flu-like symptoms such as achiness, extreme fatigue and overall feeling of being run-down after c-diff. It took several months for those symptoms to subside. I think it takes time for your immune system and body to heal after fighting off such an intense infection. For me, changing my diet to gluten free and adding some supplements seemed to help with my symptoms significantly. Although I am still left with IBS issues and it's just about a year now since my last vanco. As far as tailbone pain and anal itching and aching, I would check with a doctor to see what that could be. You should also get blood-work done to check for vitamin deficiencies as many of us were left with that after c-diff. Vitamin deficiencies can present their own symptoms. I was only deficient in vitamin D. I found that Balneol helped with anal itching and burning while I had active D. You may want to give that a try. It's just a cream that you apply. Also witch hazel pads are also soothing. However, you should check with a doctor as I don't think that tailbone pain is a common after effect from c-diff. But who knows, this illness is so strange and unique, it can probably cause anything! Hang in there.

Lisa

chinacherry88
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Re: Tailbone Pain

Postby chinacherry88 » Tue Oct 20, 2015 4:12 pm

Are you too thin? When I had cdiff I was so boney that my tailbone hurt. Try to sit on a swimming aid. It really helps.
So sorry you have suffered for so long. Wish you well during your recovery. I understand your fears of never getting back to normal but you will. We've all been there.
Stay strong.

beth22
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Re: Tailbone Pain

Postby beth22 » Tue Oct 20, 2015 9:31 pm

I was going to say about being thin too. When you lose weight, you lose the fatty padding in places where you need it. I did not have tailbone pain, but my butt would hurt when I would sit on a hard chair because I lost the fat. But, do check with the doctor.

monajane
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Re: Tailbone Pain

Postby monajane » Wed Oct 21, 2015 9:56 am

Thank you for the responses. I don't think it's a weight issue since I haven't lost any weight during this whole ordeal. I think my doctor is at a bit of a loss about the tailbone pain and wants to refer me to a colon and rectal surgeon at the Cleveland Clinic. I think it's a bit of a waste of time because I'm sure it is related to the C.diff. I'm wondering if maybe I should be re-tested since I have only had one negative test result. Just at a bit of a loss in general :-(

beth22
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Re: Tailbone Pain

Postby beth22 » Wed Oct 21, 2015 11:19 am

The only time I had tailbone pain was once a couple of weeks after I had fallen. It lasted a few weeks, but finally did go away. If you have fallen lately, that might also be a possibility.

zinnia1
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Re: Tailbone Pain

Postby zinnia1 » Wed Oct 21, 2015 12:20 pm

just a random thought- could the muscles and ligaments just be super strained? That area of the body has had a work-out. And you are using the muscles to get up and down off toilet as well. I am sure mine was sore. Have you tried a hot faith and motrin/ perhaps a heating pad?

roy
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Re: Tailbone Pain

Postby roy » Wed Oct 21, 2015 12:27 pm

Tail bone aches are a pain in the butt!

SherryC
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Re: Tailbone Pain

Postby SherryC » Mon Oct 26, 2015 10:50 pm

I, too, have had a great deal of tailbone pain. I have gone through 20 PT treatments and have been told my ligaments are unbalanced. I am super tight on one side and do stretching exercises to no avail. I do have scoliosis, but have never had this pain until I have had c-diff with 4 relapses. I have been off and on vancomycin and flagyl for 4 months now. Never thought they were related conditions until I saw this post. I am also thin, but have always been so, and know to sit with padding and change position often.

greekkc
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Re: Tailbone Pain

Postby greekkc » Thu Jun 14, 2018 1:21 pm

I know this is an old post but thought I would try a reply anyway. I am about 3 months post c-diff after treating with 10 days of vanco. About 2 1/2 months ago I started to experience fairly constant lower back and tailbone pain as well. I started PT about 2 weeks ago but with only minimal relief. Did anyone who previously posted here get any resolution about the tailbone pain?


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