3 month cdiff free

This forum is for discussions related to C. diff. including symptoms, doctors, medical advances, medications, If you are a new poster (joined within the last month), you can post more often for two months from your date of joining. After that time, one post per day only about "you." You can post more often to support others. Post other topics in Free Form Discussion and Chat Forum.
summer2727
Brand New Poster
Posts: 1
Joined: Mon Aug 11, 2014 4:55 pm

3 month cdiff free

Postby summer2727 » Mon Aug 11, 2014 5:45 pm

I was newly diagnosed last week, am on Flagyl, and I guess I am feeling somewhat better so far. Is it premature to consider fecal transplant in the event of a relapse? It seems like such a promising treatment, I would rather go right to it than take endless antibiotics! Most people seem to use it as a last resort...would you in hindsight have done it sooner? Not asking medical advice, just your opinion on your own situation.
I am a nurse also and am questioning whether to even go back into the hospital enviroment...wish I had a crystal ball to tell me what to do!
Thank you for listening anyway, this forum is a Godsend, I've felt very overwhelmed and alone:(

beth22
Long Time Contributor
Posts: 10852
Joined: Tue Apr 07, 2009 2:23 pm

Re: 3 month cdiff free

Postby beth22 » Mon Aug 11, 2014 8:29 pm

Unfortunately, unless you have two or more relapses, no one in the medical field will do a stool transfer. At least that has been the protocol so far. Some people do enemas themselves at home, but these should only be done under medical supervision and after having your donor tested.

seekingcure
Long Time Contributor
Posts: 1907
Joined: Mon Mar 25, 2013 1:28 am

Re: 3 month cdiff free

Postby seekingcure » Tue Aug 12, 2014 12:18 am

Summer2727, let me welcome you to the site. I, personally, would have opted for a FMT if I had that option, but, as Beth said, at this time, no one will perform one unless you've had at least two relapses. I only had one relapse and was on a Vanco taper/pulse that got rid of the c-diff. The main reason I would have preferred to have an FMT after the first relapse is to try and also treat my long-standing (40 plus years) of IBS, as there is some evidence that FMT's can also be helpful for that condition. At some point in the future, FMT's will likely be the first-line treatment for c-diff, but we're not there yet. Many people who do not respond to the Flagyl have success with Vanco. If you have further questions that you would like input on from more members, you should start a new topic under "Questions about C-diff" or "General Discussion."



STANDARD INTRODUCTION:
Welcome to the site. Read the first forum “All Users Read This First” and subtopics “Site History” and “Information and Guidelines for Posting to our Discussion Boards.” (Note limits on posting.) This will guide you in using the site and answer some of your questions. Read Dr. Borody's articles. Also see the topics under “CDI” – particularly Recent CDC Report, The C. diff. Bible, Tests, Antibiotics, Hygiene, and Nutrition.

“Doctors” lists physicians our posters recommended and also a list of C. diff. specialists throughout the world with contact information. (Many perform FMT's.) See the new forum “FMT’s and FE’s” or “Media Reports” for new information on C. diff.

The majority of patients (about 80%) recover with one to two rounds of Flagyl or Vancocin. An unfortunate small percentage doesn’t and can suffer for months. Most recover unless there are factors such as advanced age or other severe health problems. New treatments include FMT's, which have a high cure rate, and Dificid. Other drugs and treatments are in the pipeline, and there is increased recognition of C. diff. You can help by educating your family, friends, neighbors, and co-workers. Help us make others aware of C. difficle – which will lead to further advances in treating and/or preventing the infection. If antibiotics contributed to your C. diff, be careful about taking them again. Some people tolerate them; some develop C. diff again. Don’t take medications for C. diff. unless you are tested.

If a medication contributed to your case, please fill out an Adverse Event Report online at: http://www.fda.gov/Safety/MedWatch/default.htm. Under "Resources for You," in left-hand column, click on "Report a Serious Medical Product Problem Online." (Allison provided this information.)

The best protection for you and others is thorough hand washing and good hygiene. (See Dr. Borody’s articles and “CDI.”) For more information, see other support groups on Facebook, including http://www.peggyfoundation.org, the Mayo Clinic and Web MD web sites, and “The FMT Foundation” under “Links” on the homepage.

This is a support site not a medical site. We can’t give you medical advice but can tell you what worked for us and offer support. No one will understand what you are going through except someone who has/had this unpredictable disease. All of our moderators and frequent posters had/have C. diff. (or a loved one with it) and know how physically, emotionally, and financially disabling it can be.
Again, welcome. Remember, the odds are in your favor. (End of letter.)
Bea

roy
Administrator
Posts: 4193
Joined: Sat Aug 02, 2014 1:05 am

Re: 3 month cdiff free

Postby roy » Tue Aug 12, 2014 6:42 pm

Trimmed your post and moved it here so you get more feedback

Roy

pinkangel
Regular Contributor
Posts: 238
Joined: Mon Aug 03, 2009 6:20 pm

Re: 3 month cdiff free

Postby pinkangel » Sun Aug 17, 2014 1:07 pm

I believe there may be a few providers who would do a fmt or you could get a donor tested and try yourself if you wanted. I would ask rds infusions in Tampa. I also wish I could have done the fmt instead of antibiotics. They caused too many symptoms and made me worse.

dawn813
Regular Contributor
Posts: 115
Joined: Fri Feb 28, 2014 3:18 pm

Re: 3 month cdiff free

Postby dawn813 » Tue Aug 19, 2014 3:18 pm

summer2727,

I am so sorry you have joined the club nobody wants to be a part of. We all know what you are going thru. However, since you are newly diagnosed and have started medication, the odds are in your favor. Probiotics, ESPECIALLY saccharomyces boulardii would be a very good idea while you are taking the antibiotics. I STRONGLY urge you to check into that. In the event you do relapse, I would definately start looking for alternative ways to treat (while following your drs advice of course) whether it be by a natural supplements etc, or fmt. The antibiotics didnt help me and if I had known all the problems I was going to have, I would have done the fmt alot sooner. I did fecal enemas myself at home, which I dont recommend doing without your doctors approval, but I was desperate for a cure. I followed the "procedure" for preparing the enemas and afterwards told my doctor what I had done. All he said was "You were very brave to do that for yourself. Good for you" LOL

This wasnt a miracle cure for me by any means and I continued to suffer and it took about about 11 months before I felt better enough to say "I feel good today". This month has been 11 months and Ive only started feeling more "normal" the last couple of weeks (knock on wood. hope Im not jinxing myself by saying this!) I did my FMT at home the first week of September 2013. I had many food intolerances after the enemas that I never had before and have just recently (within the last 2 weeks) been able to eat somewhat more normally.

I hope you are one of the 80% who recover with one round of medication. Odds are in your favor! Keep us posted


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