dificid taper

Treatments, possible treatments, unsubstantiated/unproven treatments. Consult your doctor first.
nickii52
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dificid taper

Postby nickii52 » Sat Aug 06, 2016 10:09 pm

I am looking for dificid taper, I have done pulse of vanco which I am on my last week. I am trying to gather information on dificid taper or pulse but cant find any thing on the internet. Does anyone have any information on this.

NanciT
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Re: didicid taper

Postby NanciT » Sat Aug 06, 2016 10:24 pm

Hi

I am sure others will jump in here, several have been on a 1 month Dificid taper, look under CDI you may find it there.
I was on a 3 month taper but we used a taper from a research study ( I had relapsed 4 times) and was rather desperate at the time. I can't post here and believe it gave me severe Post IBS for over a year.
I am sure you will hear from others
NanciT

nickii52
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Re: didicid taper

Postby nickii52 » Sat Aug 06, 2016 10:32 pm

This s my 5th time had 2 fmt that didnt work...I am looking for options thanks

georgina
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Re: didicid taper

Postby georgina » Sat Aug 06, 2016 11:48 pm

NikaNik has been on a Dificid taper for a month , you can contact here.

NanciT
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Re: didicid taper

Postby NanciT » Sun Aug 07, 2016 11:08 am

On the thread below you mentioned you were doing well a few days ago. If symptoms have started again, often it can be Post IBS. Check with your GI, if you want to test you need to wait a few weeks since you just completed your taper. Recovery can take time and there are other medication options if you have post IBS.
Also diet can play a factor after a long taper, I started off with a bland diet and worked slowly adding foods. It all takes time to heal.
I hope you feel better soon!
NanciT

nickii52
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Re: didicid taper

Postby nickii52 » Sun Aug 07, 2016 11:24 am

thanks Nikki I am still having trouble eating and pain in stomach, stools are solid but I am scare at this time since several relapses. I have one more week of meds than recovery will take a long time, I lost over 50 lbs since AprilJust staring to maintain at this point.

NanciT
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Re: didicid taper

Postby NanciT » Sun Aug 07, 2016 12:10 pm

Nickii,
Your nearly done with a long taper which is GREAT! This may be it for you as it has worked for some many!
As far as eating, I continued with the ABD pain and also had difficulty eating for quite some time. For some of us the healing takes longer but you may be well on your way. I also used a heating pad for the ABD pain and the tightness which often came after eating anything.
I understand the fear of relapse after you have had so many but hopefully as the days pass you will feel better.
It can take some time. I stayed on a bland diet of chicken(baked), rice, cooked spinach, eggs, toast, baked potatoes and slowly added other foods. I also drank Kefir and continued on my VSL#3. This really helped in my recovery

nickii52
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Re: didicid taper

Postby nickii52 » Sun Aug 07, 2016 1:08 pm

thanks

nickii52
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Re: didicid taper

Postby nickii52 » Sun Jan 01, 2017 10:40 am

I relapsed 14 weeks past last dosage a Vanco next pill that take would be dificid if dr. prescribed again I am not a very happy camper I was doing so good what a downer

amyc
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Re: didicid taper

Postby amyc » Sun Jan 01, 2017 12:11 pm

I'm so sorry you relapsed again.

georgina
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Re: didicid taper

Postby georgina » Sun Jan 01, 2017 1:07 pm

Sorry you relapsed , try a long course of Dificid , it might be your magic bullet.

nickii52
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Re: didicid taper

Postby nickii52 » Sun Jan 01, 2017 7:33 pm

I need to look for a new doctor this one doesn't believe in using that antibiotic so going on Vanco for the time being

NanciT
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Re: dificid taper

Postby NanciT » Mon Jan 02, 2017 10:57 am

I would find another GI. Once someone has relapsed a few times they need to consider DIficid or FMT. Sometimes it can be more difficult to find a GI who does FMT but Dificid is readily available here in the states. It can be a battle with insurance because it is very expensive and some MD's do not want to fight for it.
Getting a second opinion my be the answer for you, I sadly changed GI's 3 times during my 10 months of treatment. I went in with my complete CDIFF history detailed in writing, all medication I have been on so they knew what I was up against.
Wishing you the best
NanciT


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