MucoMilk

[Tinkal2000]

Hello,
I am new to this group and have gone through four recurrences of C-Diff in 5 months. I have been on Flagyl twice, Vanco pills, and am now on liquid Vanco, which makes me feel 100% better, most of the time. I am having an FMT next week. My question is, in my research of this horrible infection, I found one study which treated the patients with MucoMilk. The company is in Germany and they inoculate the cows wit dead C-Diff spores. The results were amazing - like 100% cure rate. Has anyone else heard of MucoMilk and where it might be purchased?
Thanks,
Tinkal2000

[Bobbie]

STANDARD INTRODUCTION:
Welcome to the site. Read the first forum “All Users Read This First” and subtopics “Site History” and “Information and Guidelines for Posting to our Discussion Boards.” (Note limits on posting.) This will guide you in using the site and answer some of your questions. Read Dr. Borody's articles. Also see the topics under “CDI” – particularly Recent CDC Report, The C. diff. Bible, Tests, Antibiotics, Hygiene, and Nutrition.

“Doctors” lists physicians our posters recommended and also a list of C. diff. specialists throughout the world with contact information. (Many perform FMT's.) See the new forum “FMT’s and FE’s” or “Media Reports” for new information on C. diff.

The majority of patients (about 80%) recover with one to two rounds of Flagyl or Vancocin. An unfortunate small percentage doesn’t and can suffer for months. Most recover unless there are factors such as advanced age or other severe health problems. New treatments include FMT's, which have a high cure rate, and Dificid. Other drugs and treatments are in the pipeline, and there is increased recognition of C. diff. You can help by educating your family, friends, neighbors, and co-workers. Help us make others aware of C. difficle – which will lead to further advances in treating and/or preventing the infection. If antibiotics contributed to your C. diff, be careful about taking them again. Some people tolerate them; some develop C. diff again. Don’t take medications for C. diff. unless you are tested.

If a medication contributed to your case, please fill out an Adverse Event Report online at: http://www.fda.gov/Safety/MedWatch/default.htm. Under "Resources for You," in left-hand column, click on "Report a Serious Medical Product Problem Online."

The best protection for you and others is thorough hand washing and good hygiene. (See Dr. Borody’s articles and “CDI.”) For more information, see other support groups on Facebook, including http://www.peggyfoundation.org, the Mayo Clinic and Web MD web sites, and “The FMT Foundation” under “Links” on the homepage.

This is a support site not a medical site. We can’t give you medical advice but can tell you what worked for us and offer support. No one will understand what you are going through except someone who has/had this unpredictable disease. All of our moderators and frequent posters had/have C. diff. (or a loved one with it) and know how physically, emotionally, and financially disabling it can be.

Again, welcome. Remember, the odds are in your favor. (End of letter.)

Tinka12000,
Evidently you are well versed about C. diff. Good luck with your FMT - it has a high cure rate. Where are you having it done?

I am not familiar with Mucomilk. Let us know what you find out about itl

[Tinkal2000]

I e-mailed the company in Germany, and it seems there are more trials they have to conduct. The immune pill or shot, is open for recruiting now. Go to Cdiffdifense.org to see if there is one in your state.

Thanks,
Tinka