New Treatment for recurrent CDI - good news!

Treatments, possible treatments, unsubstantiated/unproven treatments. Consult your doctor first.
PamO
New User
Posts: 19
Joined: Sun Oct 25, 2020 12:14 am

New Treatment for recurrent CDI - good news!

Postby PamO » Sat Apr 29, 2023 11:13 pm


Avalon18
Regular User
Posts: 31
Joined: Fri Dec 11, 2020 11:33 pm

Re: New Treatment for recurrent CDI - good news!

Postby Avalon18 » Sat Aug 19, 2023 9:15 pm

SER-109 is now known as Vowst for marketing puposes. I am hoping to try it, as I am having another recurrence of C. Difficile. I cannot get a transplant in my area, so either Rebyota or Vowst (I prefer Vowst if I can find a prescriber) are the only options. Vowst is in pill form, and is much simpler to administer. It is extremely expensive, $15,400 US without insurance, and there is little or no coverage now. I am in a difficult situation. I have asthma and get frequent upper respiratory infections that are treated with antibiotics. I recently completed a 10 day course of doxycycline, and have C. Difficile again.

I hope to try the Vowst regardless of cost. The company has an assistance program, but many drug company assistance programs exclude the majority of people.

https://www.vowst.com/?utm_source=bing& ... d%20(Vowst)%20(EX)&utm_term=vowst&utm_content=Brand%20General%20(EX)

Hopefully the link works.

Avalon18
Regular User
Posts: 31
Joined: Fri Dec 11, 2020 11:33 pm

Re: New Treatment for recurrent CDI - good news!

Postby Avalon18 » Tue Aug 29, 2023 12:08 pm

I am now approved for Vowst, and my health insurance will pay for most of the cost. I will let the group know how it goes. I am finishing Dificid before I start the Vowst.

GtrGrl
Regular Contributor
Posts: 204
Joined: Tue May 04, 2021 4:43 am

Re: New Treatment for recurrent CDI - good news!

Postby GtrGrl » Tue Aug 29, 2023 12:52 pm

Congratulations, hope you’ll soon be feeling much better. We can’t get this treatment in UK; we are so behind. FMT still only option (don’t get me wrong, v grateful for it - but pill form seems better option).
Contracted C Diff from a round of Flucloxacillin, November 2020.

Metronidazole - Metronidazole - Dificid - Dificid - Vancomycin - Upper GI FMT - Vancomycin - Vancomycin - Lower GI FMT

beth22
Long Time Contributor
Posts: 10855
Joined: Tue Apr 07, 2009 2:23 pm

Re: New Treatment for recurrent CDI - good news!

Postby beth22 » Wed Aug 30, 2023 12:09 am

That's great news! Do let us know how it goes!

Avalon18
Regular User
Posts: 31
Joined: Fri Dec 11, 2020 11:33 pm

Re: New Treatment for recurrent CDI - good news!

Postby Avalon18 » Fri Sep 01, 2023 12:19 am

I imagine I won’t be able to know right away how well it works. It may take some time. Right now I also have an upper respiratory infection, but I can’t be treated with antibiotics due to C. Diff.


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