Anyone tried immunoglobulin?

Please limit your post to questions only. You can ask multiple questions in the post. (One post per person per day about yourself. See exception in General C. diff.Discussion.)
Post Reply
cjforrest
New User
Posts: 16
Joined: Mon Oct 20, 2008 4:00 pm

Anyone tried immunoglobulin?

Postby cjforrest » Fri Feb 20, 2009 10:49 pm

If some of us fail to produce antibodies to C Diff, wouldn't it stand to reason that immunoglobulin might help? Afterall, it contains C Diff antitoxin. Has anyone tried immunoglobulin as part of their therapy? If so, what did you think of it -- was it helpful?
Top
TheVike
Long Time Contributor
Posts: 483
Joined: Mon May 21, 2007 7:36 pm

Postby TheVike » Sat Feb 21, 2009 10:14 am

my Doc said it was an option but never went needed to go that far.... I only had once course of Flaggyl/Metro ... He freaked me out when he said I neede to tbe tested for AIDS as I was first so sick and my WBC where over 30K!
Top
cjforrest
New User
Posts: 16
Joined: Mon Oct 20, 2008 4:00 pm

Postby cjforrest » Sat Feb 21, 2009 11:25 am

My ID hasn't brought it up but I'm thinking about bringing it up next month when I see him. I don't know much about it so I thought I'd inquire here first to see how much info I can get. If anyone knows about how well it works, side effects, etc., I'd like to learn anything I can about it. I think it's administered IV (correct?). If you can direct me to any resources please do. Thanks!
Top
anlockwood
Long Time Contributor
Posts: 456
Joined: Sat Sep 06, 2008 9:10 am

Postby anlockwood » Sat Feb 21, 2009 4:05 pm

Read Christina's case histroy and maybe you could pm her. I have read others but don't remember who they were right now.
Amanda
Top
cjforrest
New User
Posts: 16
Joined: Mon Oct 20, 2008 4:00 pm

Postby cjforrest » Sat Feb 21, 2009 11:50 pm

Thank you Amanda and Roy! The information was most helpful. I was encouraged by Christina's story. I see that her IV immunoglobulin treatment was considered "last resort". Personally, if it gets to that point I'd like to make it my next-to-the-last-resort treatment and save the fecal infusion for my treatment of last resort. I know people here sing its praises, but right now I just can't get past the "ick" factor. I haven't ruled it out but I'm not ready to go there yet.
I think I'll bring up the immunoglobulin next time I see my ID and see what he thinks. It sounds like I'd have to check with my insurance company to see whether they'd cover it as I don't have a few thousand dollars just laying around. Thanks again for responding to my post. The information has given me hope!
Top
ClDif
Regular Contributor
Posts: 189
Joined: Sun Dec 30, 2007 1:58 pm

Postby ClDif » Sun Feb 22, 2009 5:33 pm

I got IVIGs as well and believe they wareded off a 2nd relapse for me - but no proof of course. Woud do it again in a heartbeat if I had you, despite the risks.... If you put IVIG or immunoglobulins in the search window you should find quite a few more posts on this... Good luck!
Top
Bobbie
Administrator
Posts: 12688
Joined: Sat Aug 06, 2005 8:00 pm

Postby Bobbie » Mon Feb 23, 2009 9:20 pm

See Treatments-IV Immune Globulin. Some of the info. is old, but check with National Jewish for the latest info. (Google it if the info.isn't in Treatments.).

In 8 or 9 yrs., I remember only two people (Christina & Karney - a child) who IVIG "cured."It is expensive, & often insurance doesn't cover it.
No treatment is without risk. But if you think it's for you, "go for it" -- after a lot of research & consults with docs.
Top
Post Reply

Return to “Questions about Clostridium difficile”



Who is online

Users browsing this forum: No registered users and 80 guests