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Please help...so so scared

Posted: Fri May 18, 2018 9:45 am
by Amb66
Hi everyone, I’m back (23 yo female). 2 weeks ago I tested negative for cdiff after finishing a vanco taper over a month before so I just assumed I had a bad virus that was sticking around and hitting me hard. Well it’s been 2.5 weeks and I’m still running to the bathroom 15x a day. Sometimes it’s literally just gas and I’m done but I thought I’d be feeling better by now. Is it possible/likely to get a false negative? I just don’t know what to do, I don’t feel awful like I do with cdiff it’s just the constant running to the bathroom with inconsistent stools (some good, some D) that is scaring me so much. I know I’m underweight and as long as there’s D I fear I’m not gaining weight. Please please any help is greatly appreciated. I feel so alone and depressed and just don’t know what to do.

Re: Please help...so so scared

Posted: Fri May 18, 2018 10:22 am
by Machaon
Hi Amb, sorry you are still having problems!

Well... what do we know about C-diff? We know that the infection can cause damage to one's colon (colitis, IBS), which can then effect digestion and cause potty problems.

Your C-diff test was negative and, although you are having nasty symptoms, you don't seem to be having the typical C-diff diarrhea (multiple daily watery diarrhea), IMHO.

What to do? You could decide to treat your condition as one of colitis and/or IBS and modify your diet and add probiotics, prebiotics and digestive enzymes. You could also seek medical help for colitis and/or IBS. At the same time, you might watch for worsening symptoms of C-diff and if you experience them, then get more medical help for C-diff.

As far as diet, probiotics, prebiotics and digestive enzymes, the members of this helpful site know a lot more about them than I do.

Regards, best of luck and health! Bob

Re: Please help...so so scared

Posted: Fri May 18, 2018 1:20 pm
by MKW
You should absolutely report your symptoms to your doctor and ask if you should be retested.
Sadly, your symptoms could just be post infectious IBS and food intolerances that you have developed, which can happen to people unfortunately.
But also, testing negative doesn’t really mean anything.
It means you don’t have an active infection right when you do the test.
I relapsed two weeks after a pcr negative test.
You can still be carrying toxigenic c Diff but not register as a positive pcr test.
Also you can be pcr positive but not have an active infection, so this is why they also test for toxins.
And I know this is so scary. Please keep us posted on how you are doing.
You are not alone here... c Diff is the roughest ordeal I have ever been through! - Melanie

Re: Please help...so so scared

Posted: Fri May 18, 2018 4:08 pm
by Lid49
Hi, call you're Dr for testing and please go back to safe bland diet, if you take probiotic that also can give gas,
Lidia.

Re: Please help...so so scared

Posted: Sat May 19, 2018 8:50 am
by Amb66
Thank you all so much for your replies. I’ve been taking Florastor for like 4 months now and haven’t changed that. One thing I am curious about is is there a significant difference between D and WD? I have D throughout the day but never WD like when I had cdiff. Thanks for the help and support

Re: Please help...so so scared

Posted: Sat May 19, 2018 2:57 pm
by MKW
Hi, it seems everyone is different. For me I had classic c Diff symptoms with yellowish WD 15+ times a day once I had full onset which happened over a 12 hour or so period of time with my relapses. First time took a few days to develop WD.
For most people c Diff is progressive. If you keep getting a little better, then worse and back and forth that isn’t typical c Diff.
But... in recent months on here I have read posts by several posters who do not have classic symptoms.
It’s very confusing.
Does your D respond to pepto or immodium? If so... not likely c Diff. My D with c Diff did not stop no matter what. If it’s IBS, immodium will shut down the spasming and you will have radical improvement.
Please know that any anti diarrheal is contraindicated with suspected c Diff infection though. Your body needs to expel the toxins.

Re: Please help...so so scared

Posted: Sat May 19, 2018 4:06 pm
by roy
Imodium is dangerous as it traps in toxins.
If you suspect you have c.diff do not use it.

Re: Please help...so so scared

Posted: Sat May 19, 2018 9:17 pm
by Ril
Running to the bathroom with spasms, gas and loose stools but not watery d may well be IBS. It can take quite a while to start gaining weight back. That is not alarming.
If you are concerned and uncomfortable you should call your dr and describe your symptoms. He may want to prescribe an antispasmodic. There are several and many of us have taken them to help with symptoms of PI IBS.

As Roy said do not take Imodium until you speak with your dr and he assures you it is not c diff and you may use it.

Rita

Re: Please help...so so scared

Posted: Sun May 20, 2018 10:17 am
by Amb66
Thank you all so so much for your replies. I’m feeling better about figuring things out. I’ll call my doctor tomorrow morning and see what he says. Keep you updated