Fibromyalgia after cdiff

[cjohns]

Has anyone experienced Fibromyalgia after being diagnosed with cdiff?

[Lisa33]

I have never been actually diagnosed with fibromyalgia by a rheumatologist, but I definitely think that I got this after c-diff. I felt extremely sore to the touch at various parts of my body. I was also extremely fatigued. Once I built up my immune system, it seemed to go away. I had a couple of waves of this terrible soreness and achiness over the past year, and it seemed to happen when I was extremely run-down. My PCP had said that it could be fibromyalgia as my blood work all came back fine. If it persisted, I was to see a rheumatologist, but it seemed to have went away again for now. I find that eating right along with supplements such as multi-vitamins, and vitamin D help to boost my immune system and get rid of the body pain that I was feeling. If you google causes of fibromyalgia, it does say that infections or extreme emotional stress such as PTSD can bring on fibromyalgia. I would say that c-diff is an intense infection that does bring on extreme stress and anxiety, and many do get PTSD afterwards. So, my opinion is that this is possible after c-diff. Obviously, only a doctor can really diagnose you though.

[beth22]

I had and continue to have fibromyalgia that started with c diff. I also have SIBO and my SIBO specialist has done research and conducted studies about fibromyalgia associated with SIBO or other digestive bacterial overgrowths because so many of his patients had fibromyalgia and apparently there is a definite connection. The toxins, whether from c diff, or IBS seem to cause it according to his findings.

[saraht]

I too have fibromyalgia issues since having c.diff, I actually have a lot of issues post c.diff, I guess it could be possible all kinds of things can happen post c.diff but that is an area I don't think is being studied as much, since right now they just want to find a cure. I am a firm believer that if one system is thrown off, they all deal with it.

[Ruthless]

Hi everyone. Just registered n this is my 1st post. let me say that on registering, even spelling the word backwards to do so took stupid amount of concentration!!
Here starts my burst of feelings on paper just knowing that others are ot there suffering for real and Im not going crazy trying to convince doctors theres something wrong n I need serious pain relief or free massages or just a good donk on the head to be able to sleep more than an hour without waking up in aching leg pain where it feels like there are people in my legs doing crazy exercise and wanting to make my legs move for relief.
by the way, I never post anything online but Im so desperate to be heard.

I contracted clostridium difficille 4 years ago working in hospital. I got it not once but a 2nd time 2weeks later with full blown A++ B++something. 1st.
metranitazol then valamicin then soe trial drug under infectious diseases.

Oh. Im 51 and up til 4 years ago, never sick, fit as chain sawing and inline skating and active crazy, super cool mum of 6. did I mention solo mum too.

cant believe Ive got a sense of humour still.

IVE BEEN SICK SINCE!!!!
IBS, I dont heal from wounds, hospialized lots for impaction, basically been lying on my bed a lot, hav had mental health issues since n been clinically depressed needing hospitalization. Ive put on 25kilo n hAve never in my life been overweight.

Now its fibromyalgia nad I have all the symptoms and feel like Im going crazy and Like Im 80 years old.

My life has dramatically changed , if not stopped.

I have gastroparesis n my bowel was to come out last november but the surgeon has put me on mega magnesium.

I was put on 225mg of EFFEXOR and at 1st 900mg of quetirepine, now down to 300mg.

theres more but now I just feel like crying. I was so normal and now Im basically retired and only wen I go and farmsit, can I cry into the dog, or shud I say fall cus I can barely stand up alot of the time. The cows dont mind me going slow, and the chickens seem happy to see me.

I say this cus I used to be social as and now Im quite reclusive ate home, trying to get energy to love on my grand children and children.

I tried to get doctor to put this under ACC but they wont. Its cost me working n the medical n prescriptions n massage n time has cost me everything.

THANKYOU SO MUCH to all of you that have taken the immense effort to write about yr experiences. I cant explain how good it feels that this must be real and its not in my head. Ive never been lazy but thats how I feel now.

If you read all this, seriously cool n I hope it comforts someone out there like it has me. It feels good to debrief for the 1st time.

Ruth

[NanciT]

Hello Ruthless and Welcome to the site. Please read the first forum for all new posters

It sounds like you were able to beat CDIFF with 2 rounds, which is fantastic but left with IBS among other issues. Many of us are left with issues and it takes time to overcome all of this.

This post you wrote on is an old one from January. If you post again with a question, start a new thread and everyone will see it and answer.

Sounds like you have been through a great deal

Feel better soon
NanciT

[Ruthless]

Thankyou.