MOVED - New Poster mcrochet

Please limit your post to questions only. You can ask multiple questions in the post. (One post per person per day about yourself. See exception in General C. diff.Discussion.)
beth22
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MOVED - New Poster mcrochet

Postby beth22 » Tue Sep 08, 2015 1:33 am

Postby mcrochet » Mon Sep 07, 2015 6:34 pm

I am hoping I am posting in the right place. I have c.diff from antibiotics from sinus and then yeast infection. Must be why. Leviquin was hard on me. Anyway on my 5th day of Vanco and still can't eat or keep fluids in me. D today was 5 times so far and it's only 6:30 PM. I take Florajen 3. I saw people on here take and recommend Florastor so I ordered some today. I was shocked to see it at the very bottom of the top 10 list on a site I saw. Did I make a mistake? I hope I worded this correctly.

beth22
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Re: MOVED - New Poster mcrochet

Postby beth22 » Tue Sep 08, 2015 1:38 am

STANDARD INTRODUCTION:
Welcome to the site. Read the first forum “All Users Read This First” and subtopics “Site History” and “Information and Guidelines for Posting to our Discussion Boards.” (Note limits on posting.) This will guide you in using the site and answer some of your questions. Read Dr. Borody's articles. Also see the topics under “CDI” – particularly Recent CDC Report, C. diff. Bible, Tests, Antibiotics, Hygiene, and Nutrition.
“Doctors” lists physicians our posters recommended and also a worldwide list of C. diff. specialists with contact information. (Many perform FMT's.) See the forum “FMT’s and FE’s” or “Media Reports” for new information on C. diff.
The majority of patients (about 70%) recover with one to two rounds of Flagyl, vancomycin, or Dificid. An unfortunate small percentage doesn’t and can suffer for months. Most recover unless there are factors such as advanced age or other severe health problems. New treatments include FMT's, which have a high cure rate. Other drugs and treatments are in the pipeline, and there is increased recognition of C. diff. 20l6 will be a year of many advances and HOPE.
Help us make others aware of C. difficle – which will lead to further advances in treating and/or preventing the infection. If antibiotics contributed to your C. diff, be careful about taking them. Some people tolerate them; some develop C. diff again. Don’t take medications for C. diff. unless you are tested.
For more information, see other support groups including http://www.peggyfoundation.org, Clostridium Difficile Infection (CDI) Support Group, FMT Discussion, Fecal Transplant Foundation, C Diff Foundation, and the UK Support Site. There is also information on some of the better medical sites like Mayo's, Medscape, and WebMD, and the CDC website. Don't use "Dr. Google" to diagnose yourself.
This is a support site not a medical site. We can’t give you medical advice but can tell you what worked for us and offer support. The best protection for you and others is thorough hand washing (soap and water are preferable) and good hygiene by you, those around you, and your health care providers.
No one will understand what you are going through except someone who has/had this unpredictable disease. All of our moderators and frequent posters had/have C. diff. (or a loved one with it) and know how physically, emotionally, and financially disabling it is.
Again, welcome. Remember, the odds are in your favor. (End of letter.)

People tolerate probiotics differently. I can't take lots of them, so I take VSL#3 and only in small doses. My mom takes Digestive Advantage. Others take other ones. Take whichever one agrees with you. Florastor works well for many. I can't take it. It gives me a lot of gas and GI upset and also a rash. But, you have to try. If you get GI upset with probiotics, you may be one of the ones who can't take it. If you continue to have problems with taking fluids, you have to contact the doctor. You definitely don't want to get dehydrated.

Lisa33
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Re: MOVED - New Poster mcrochet

Postby Lisa33 » Tue Sep 08, 2015 10:25 am

During active c-diff, my GI doctor recommended VSL-3. I took 2 a day. However, they should be spaced out from the vanco as the vanco will kill it. Florastor is a yeast probiotic with Sacc. Boullardi which will not be killed by meds. I also drank Kefir and ate yogurts with live cultures daily. In recovery, I added 1-Florastor, so took 1 Florastor and 1 VSL-3 per day. As Beth said, not everybody can tolerate probiotics, so you have to find the right balance that works for you. I had a lot of gassiness and bloating when I started them, but it was tolerable. I stuck with them and once my body adjusted, the gassiness and bloating subsided.

So sorry you are still feeling ill. Hopefully the vanco really kicks in now.
Lisa

mcrochet
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Re: MOVED - New Poster mcrochet

Postby mcrochet » Tue Sep 08, 2015 10:56 pm

Well thank you. The GI doc said another prescription will be needed. She also told me NOT to use any probiotics until the c.diff clears up. I got an IV today. They gave me saline with potassium, I had such bad leg cramps last night. The ER doc told me probiotics were fine and it says so in the papers they sent home with me. Confusing. I don't have a stomach ache at least and I think it's because of the Florjen. I asked the GI doc why not to take any on an email portal we have and I'll see what she says. Having a hard time finding liquids or food that will stay in me. In the bathroom all the time. This is miserable.

mcrochet
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Re: MOVED - New Poster mcrochet

Postby mcrochet » Wed Sep 23, 2015 1:51 pm

I'm doing well. In recovery. Stools are pretty good, no D. I switched to Florastor-the GI doc recommended it. I notice others on here take VSL or other probiotics at the same time. It must be safe? Florastor seems to bother my tummy a little. No vanco for 3 days now. Thanks.


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