IMPORTANT NOTICE

Please limit your post to questions only. You can ask multiple questions in the post. (One post per person per day about yourself. See exception in General C. diff.Discussion.)
Bobbie
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IMPORTANT NOTICE

Postby Bobbie » Sun Feb 01, 2015 11:43 pm

According to well-known C. diff. researcher, "There will be a new treatment for CDI, IBS, colitis soon. An oral capsule of freeze-dried powder representative of all normal microbiota components to repair antibiotic-damaged flora."

I don't have more details, but hope is around the corner. I've known about C diff since l979 when my 4-yr. old son had it (and then again six years later). I had it from l993-l997, l999, and 2011, and worked on this site for l5 years. This is the best news I've heard in all these years. No need for invasive scopes, finding and testing a donor, traveling long distances, or trying more drugs that often kill some of the good as well as the "bad" C diff bacteria.

I don't know the name of the product yet or when it will be available, but the researcher told me it would be soon. Note the description given - CDI, IBS, colitis - so evidently no need for 2 or 3 positive c diff tests.

Will let you know more when I know more, and then we will celebrate!

getwellsoon
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Re: IMPORTANT NOTICE

Postby getwellsoon » Mon Feb 02, 2015 8:42 am

Some of the best news I have heard in my whole life. I pray this is the year we can close the door on Cdiff and also help other gut ailments.
CAROL

NanciT
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Re: IMPORTANT NOTICE

Postby NanciT » Mon Feb 02, 2015 12:01 pm

Fantastic News Bobbie! Thank you for posting!


Such Great Hope from this site and all who post here!

Looking forward to more news!

Bobbie
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Re: IMPORTANT NOTICE

Postby Bobbie » Mon Feb 02, 2015 5:05 pm

See other responses in Questions. Posted in both forums so more would read.

Once this is perfected and available for use, wish we could have a party altho difficult because we live in so many places!l

justme
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Re: IMPORTANT NOTICE

Postby justme » Tue Feb 03, 2015 4:10 am

What a relief this would be for all us who suffer from these illnesses.
Anne

mjmcgetr
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Re: IMPORTANT NOTICE

Postby mjmcgetr » Tue Feb 03, 2015 11:30 am

Can't wait to take these for my pi ibs !! I have been reading a lot about SER 109 moving into phase three clinical trials. Not only does it crowd out c diff but an unexpected side effect is that it encourages the growth of other good bacteria ! Does any one know how long it takes for commercial use approval once phase three trials commence ? I know the 48 million dollar funding is in place but just wondering what kind of time lien we are looking at here !?

roy
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Re: IMPORTANT NOTICE

Postby roy » Wed Feb 04, 2015 4:58 am

You could call and ask them but it's probably quite a while http://sereshealth.com/pipeline/product_pipeline/

saraht
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Re: IMPORTANT NOTICE

Postby saraht » Sun Feb 08, 2015 8:07 pm

This sounds amazing! I am happy to say that I have seen many posts on social media about FMTs and gut flora. The word of this disease is spreading quickly compared to when I would try to explain to someone what c.diff is, and what antibiotics do to our gut flora.

megan2
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Re: IMPORTANT NOTICE

Postby megan2 » Tue Feb 24, 2015 5:37 pm

Ser 109 is not mentioned much on this board. SER-109 trial is starting this spring and I have been asked by a doctor I see who is involved in it to participate for the 8 week trial. I have heard only good things about this but because it is a trial I have some concerns. If I am still in the same shape I am now I will do the study. If anyone here has taken ser 109 could you please contact me I would be interested in talking to you. I have been given piles of literature by my doctor and I think this is very promising .

Misscshell24
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Re: IMPORTANT NOTICE

Postby Misscshell24 » Tue Feb 24, 2015 6:14 pm

I've emailed Seres and been online every day to check for days, qualifications, locations, etc for the SER-109 trial. All I have been able to find is "early 2015". Meg, post or pm me. I'd love to know more. Thanks.
Michelle

mjmcgetr
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Re: IMPORTANT NOTICE

Postby mjmcgetr » Wed Feb 25, 2015 11:51 am

Meg I have read a lot about SER 109 . It has some big money behind it and looks very promising ! Let me know if you go for it !! I would love to here how it works.

beth22
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Re: IMPORTANT NOTICE

Postby beth22 » Thu Feb 26, 2015 3:09 am

I wanted to do it, but because I have had FMT, I don't qualify. It sounds very promising and since it is not a medication, I am very interested. It sounds as if it can balance out the good flora and it is this imbalance that causes most of our post-c diff problems.

Bobbie
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Re: IMPORTANT NOTICE

Postby Bobbie » Thu Feb 26, 2015 2:20 pm

Megan 2,

We have a little info about Seres 109 on the site. Rebiotix is als conducting a study.

Will you give me the name and location of your doc., (if he OKs it; believe he is NYC) , other doc's involved in the trial, and any other info about the trial? Will it be a blind trial? (I was in a blind trial for S Boulardii - now Florastor - years ago.)

I will run the info by the site owner and put it on the site If the owner OKs it.

We need all the hopeful info possible. Did you read the CDC report I posted last night? Scary.

Bobbie
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Re: IMPORTANT NOTICE

Postby Bobbie » Wed Jan 03, 2018 10:37 pm

Unsecured site. Just received msg site is unsecured. Never had this happen before. Notifing
Webmaster.

Scout21
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Re: IMPORTANT NOTICE

Postby Scout21 » Mon Apr 30, 2018 4:25 pm

Any updates with this?


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