2 FMTs still problems

If you have had or are considering an FMT please share your experiences here.
amyc
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Re: 2 FMTs still problems

Postby amyc » Wed Nov 30, 2016 2:14 am

Porphyria. That does explain lots of things. I love the Mayo website for disease explanations.

http://www.mayoclinic.org/diseases-cond ... n-20028849

amyc
Long Time Contributor
Posts: 2084
Joined: Thu Nov 10, 2011 8:15 am

Re: 2 FMTs still problems

Postby amyc » Wed Nov 30, 2016 2:32 am

Acute porphyria symptoms.

http://www.mayoclinic.org/diseases-cond ... n-20028849

It does sound a lot like what you describe. The treatment is to make sure you eat enough carbs and candy? Seriously.

http://www.mayoclinic.org/diseases-cond ... n-20028849

So, get that C diff test in, and then buy a bunch of skittles--for medicinal purposes, of course. Absolutely you must let your GI know, and I would ask about anti-anxiety med to take when you have attacks. The porphyria could explain why you had trouble tolerating the anti-depressant you tried a couple of years ago.

You should also order a Med-Alert bracelet. I need to get one too for all my allergies and masto stuff.

roy
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Re: 2 FMTs still problems

Postby roy » Wed Nov 30, 2016 5:26 am

Here's a reminder of the site rules
It's ONE post a day about yourself and you don't reply to it untill the next day so you can read all replies.
No answering "ping pong " style, if you want to get into a conversation with someone use the PM feature.
Chat forum can be used for things other than c.diff.

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Last edited by Bobbie on Thu Mar 31, 2016 8:00 am, edited 39 times in total.
Reason: updating
Bobbie
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Bobbie
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Re: 2 FMTs still problems

Postby Bobbie » Thu Dec 01, 2016 1:38 am

Roy "spelled it out." Please listen. We give brand new posters leeway, but some of you are not new and repeat the same questions over and over.

We understans how you feel but follow the rules if you want to stay on the site. We do not have enough moderators to answer the same questions again and again.

Several moderators suggested some of you seek professional help. Many of us have done so. C diff is a particularly upsetting disease. I've had it three times since 1993 - the first time for three years. I now have IBS. My son had c diff many years ago. It is one horrible infection.

We are here for you but have many posters and cannot spend excessive time answering the same questions. Participate in your own recovery - do research, keep busy, exercise if possible, and try to not obsess about c diff - difficult! If you must post more than once a day, use the Chat forum or PM each other.


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