Post-FMT and doing great

If you have had or are considering an FMT please share your experiences here.
njthurman
Brand New Poster
Posts: 2
Joined: Thu Jan 14, 2010 4:17 pm

Post-FMT and doing great

Postby njthurman » Sun Feb 28, 2016 5:05 pm

Hi everyone.I have been reading for years but never posted. Well after 4 different bouts of CDiff over the past 8 years, this last one lasting 5 months. I finally had the FMT on Feb.17, and I think I am cured! I was a little worried right after, because in the recovery room I had uncontrolled D a couple of times and thought I might have lost it all, but the Dr said it should be okay, since he "painted" the walls of the entire colon with it. Lo and behold, that was the last D I had. It's been 11 days, and I feel totally back to normal. There was some slight pain and gas for a few days, but even that is gone. I used the "donor stool bank", the Dr assured me that all the donors are tested thoroughly. I was so leary of having this done, for years I said I would 'never do that', but I was desperate after 4 rounds of Vanco not working. And I couldn't take Flagyl. I am thanking the Lord for this healing. And hoping and praying that I don't get sick and have to take any antibiotics any time soon, as that's what caused it every time. The 1st time was in the hospital after surgery, as well as the last time last fall. Just wanted to share that the FMT was successful! Thank you all for your posts, they have been very helpful and informative.

richlin
Regular Contributor
Posts: 108
Joined: Sat Feb 13, 2016 11:05 am

Re: Post-FMT and doing great

Postby richlin » Mon Feb 29, 2016 12:35 am

Awesome news!

Glad to hear the recovery wasn't as bad. I had a FMT about 2 weeks ago and still battling some PI-IBS.

Do you have any lingering symptoms?

Lisa33
Long Time Contributor
Posts: 2430
Joined: Mon Sep 29, 2014 1:45 pm

Re: Post-FMT and doing great

Postby Lisa33 » Mon Feb 29, 2016 10:56 am

STANDARD INTRODUCTION:
Welcome to the site. Read the first forum “All Users Read This First” and subtopics “Site History” and “Information and Guidelines for Posting to our Discussion Boards.” (Note limits on posting.) This will guide you in using the site and answer some of your questions. Read Dr. Borody's articles. Also see the topics under “CDI” – particularly Recent CDC Report, C. diff. Bible, Tests, Antibiotics, Hygiene, and Nutrition.
“Doctors” lists physicians our posters recommended and also a worldwide list of C. diff. specialists with contact information. (Many perform FMT's.) See the forum “FMT’s and FE’s” or “Media Reports” for new information on C. diff.
The majority of patients (about 70%) recover with one to two rounds of Flagyl, vancomycin, or Dificid. An unfortunate small percentage doesn’t and can suffer for months. Most recover unless there are factors such as advanced age or other severe health problems. New treatments include FMT's, which have a high cure rate. Other drugs and treatments are in the pipeline, and there is increased recognition of C. diff. 20l6 will be a year of many advances and HOPE.
Help us make others aware of C. difficle – which will lead to further advances in treating and/or preventing the infection. If antibiotics contributed to your C. diff, be careful about taking them. Some people tolerate them; some develop C. diff again. Don’t take medications for C. diff. unless you are tested.
For more information, see other support groups including http://www.peggyfoundation.org, Clostridium Difficile Infection (CDI) Support Group, FMT Discussion, Fecal Transplant Foundation, C Diff Foundation, and the UK Support Site. There is also information on some of the better medical sites like Mayo's, Medscape, and WebMD, and the CDC website. Don't use "Dr. Google" to diagnose yourself.
This is a support site not a medical site. We can’t give you medical advice but can tell you what worked for us and offer support. The best protection for you and others is thorough hand washing (soap and water are preferable) and good hygiene by you, those around you, and your health care providers.
No one will understand what you are going through except someone who has/had this unpredictable disease. All of our moderators and frequent posters had/have C. diff. (or a loved one with it) and know how physically, emotionally, and financially disabling it is.
Again, welcome. Remember, the odds are in your favor. (End of letter.)

This is the formal welcome letter. That is so great that you are recovering well from the FMT. Thank you so much for sharing. I know you are still in early recovery, but If and when you feel comfortable telling your story, please post in success stories. It gives so many others who are suffering hope that this battle does end.

georgina
Long Time Contributor
Posts: 2635
Joined: Sat Sep 12, 2015 10:07 am

Re: Post-FMT and doing great

Postby georgina » Mon Feb 29, 2016 12:32 pm

Hi NjThurman
Congrats for having done the FMT and i'm so glad your are doing well, it seems that for you FMt worked like a miracle cure ( not the norm unfortunately). Recovery is a long and bumpy road ,so don't be scared if in future you are going to experience some off days.Good luck!

njthurman
Brand New Poster
Posts: 2
Joined: Thu Jan 14, 2010 4:17 pm

Re: Post-FMT and doing great

Postby njthurman » Mon Feb 29, 2016 6:12 pm

The only lingering symptoms I notice are some occasional bloating and mild tenderness. Which is really nothing new, as I have Ulcerative Colitis, which is in remission and has been for a few years. I take maintenance meds for it every day.
So far so good. For now anyway, cautiously optimistic and doing the happy dance here!

Bobbie
Administrator
Posts: 12688
Joined: Sat Aug 06, 2005 8:00 pm

Re: Post-FMT and doing great

Postby Bobbie » Mon Feb 29, 2016 11:40 pm

Great news. May I ask where you had the FMT for others' info?


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