Other C. diff. Support Groups

If you have had or are considering an FMT please share your experiences here.
Bobbie
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Joined: Sat Aug 06, 2005 8:00 pm

Other C. diff. Support Groups

Postby Bobbie » Tue Mar 04, 2014 1:39 am

There are now numerous other support groups, and most have information on FMTs. Several are on Facebook.

UK SUPPORT SITE FOR C. DIFF..
http://www.cdiff-support.co.uk
Our moderator, Roy, is one of the first members of this group. There is more information about the group and its founder, a lovely lady name Graziella, in the first announcement in General Discussion.

CHRISTIAN LILLIS' SITE
http://www.peggyfoundation.org/
One of our former posters (Christian Lillis) set up this site after his mother, Peggy, died of C. diff. Check it out --lots of good information here.
Info. also in CDI.

FECAL TRANSPLANT FOUNDATION
http://www.thefecaltransplantfoundation.org.
Many of its members are prestigious doctors/researchers who do FMT's, and you will recognize their names. Dr. Mark Mellow of OKC is a member. I had a FMT from Dr. Mellow in May 2012. He is a charming man and wonderful physician

The organization was founded by Catherine Duff, a frequent C. diff. sufferer. Contact the above hyperlink for additional information and to join.
Info. also in the Doctors forum and listed under LINKS on the home (lst) page.

FACEBOOK
There are C. diff. sites on Facebook. Even if they say they are closed, apply, and they will accept you.

Go to FB. Type in C. difficile, and you will be directed to the sites.

One is titled "Fecal Microbiota Transplant" (has moderators; main moderator is Tracy Mac). Another is "C-diff." Contact people are Jett Richey and Lisa Neudecker.

Some web sites give FIY info. for FEs. We do NOT recommend FEs at home without medical supervision.

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