I'm now at 128 days no meds. and no relapse. Hooray!
My last positive after finishing Vanco for 30 days was mild enough that Questran took care of the last of it and allowed my body to build up it's own defenses again. I haven't posted here earlier as I still have abdominal pains and bloating that really feel very similar to the mild cdiff, but I suppose is just IBS. Since the recent tests by my ID doc showed there were still some issues, I was waiting to see what happened. But I'm at the point where I shouldn't have to worry about cdiff relapse anyway, and that's a relief. IBS is definitely easier to deal and there are plenty of meds to help with it.
I'm walking again and exercising and working on getting my physical strength back up to where it was...and hoping to be riding the horses again before too long!
I'm working on several CDiff projects in hopes of helping to stamp out patient ignorance (because doctors don't tell them anything!) and, especially, ignorance in the medical field.
No one, absolutely no one, should have to go through what so many here have - an uneducated medical staff improperly treating the disease and/or lack of belief that "it's" back. No one should have to come to this site and say they learned more here than from their GI doctor.
My motto - "stamp out CDiff ignorance"
Eight months ago I read statements from the moderators and some regular members saying "it really does get better" and "eventually it does go away" and couldn't really fathom it in my post-septicemia state, nor after relapse upon relapse ...but they were right. It just took time. And patience. Thank goodness for their experience, their knowledge, their willingness to share, and their time spent answering questions and giving support. To all of you - your many kindnesses will not be forgotten.
God bless,
5th Round was a knock-out!
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Sheila1
- Long Time Contributor
- Posts: 468
- Joined: Sat Aug 26, 2006 4:04 pm
5th Round was a knock-out!
~Sheila
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Laurie
- Brand New Poster
- Posts: 3
- Joined: Sat Oct 14, 2006 9:33 pm
Congratuations Sheila!!!
Dear Sheila: My mom and I are so happy to hear the fabulous news. As you know, mom has been suffering with recurring C-diff since July 06. She is encouraged by your success story.
Happy Easter! Laurie and Donna
Happy Easter! Laurie and Donna
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Bobbie
- Administrator
- Posts: 12688
- Joined: Sat Aug 06, 2005 8:00 pm
Sheila,
Hooray for you. You are over the worst of it. Glad the site helped & thx. for your many valuable contributions to it.
IBS is another "pain in the ass" but far preferable to C. diff. I use Imodium & a heating pad & ocasionally Tylenol. There are meds., but I"ve have tried to stay away from them -- on enough meds. already. As you know, Zelnorm was just recalled.
Please continue to contribute to the site. Perhaps some day, some of us "hard core" C. differs will be able to do more toward educating the public and the medical field about this horrible disease.
Congrats again & Happy Easter.
Hooray for you. You are over the worst of it. Glad the site helped & thx. for your many valuable contributions to it.
IBS is another "pain in the ass" but far preferable to C. diff. I use Imodium & a heating pad & ocasionally Tylenol. There are meds., but I"ve have tried to stay away from them -- on enough meds. already. As you know, Zelnorm was just recalled.
Please continue to contribute to the site. Perhaps some day, some of us "hard core" C. differs will be able to do more toward educating the public and the medical field about this horrible disease.
Congrats again & Happy Easter.
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Nancy1
- Administrator
- Posts: 1902
- Joined: Wed Jan 18, 2006 1:48 am
Congratulations, Sheila! That's great news. I am so happy for you. What a way to celebrate Easter! Thank you too, for all of your contributions to the site. It's wonderful that you are devoting so much time and energy to helping all of us. I surely wish you well in everything, and especially in your cdiff projects.
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Dyngo
- Brand New Poster
- Posts: 2
- Joined: Tue May 01, 2007 9:52 pm
Sheila,
Word to what you said about doctor and patient ignorance about this. I had my infection for a month before tested and am convinced if treated earlier. . . Well, you know the rest. If it wasn't for this site, I don't know how I would have gotten through it, or gotten over it, for that matter. I had to lead my doctors by the nose, and even had to correct lab people on test prep and hold times. No kidding. And I think people tend to think it's just an infection, or just diarrhea, and how can that be a big deal? But it is actually a potential killer, and certainly a debilitator. I have done everything short of wearing a T-shirt saying "I had C-diff. Ask me how!" But I still feel like it isn't enough.
This is my first post. I'd like to thank everyone involved with this site. It is an amazing thing.
Word to what you said about doctor and patient ignorance about this. I had my infection for a month before tested and am convinced if treated earlier. . . Well, you know the rest. If it wasn't for this site, I don't know how I would have gotten through it, or gotten over it, for that matter. I had to lead my doctors by the nose, and even had to correct lab people on test prep and hold times. No kidding. And I think people tend to think it's just an infection, or just diarrhea, and how can that be a big deal? But it is actually a potential killer, and certainly a debilitator. I have done everything short of wearing a T-shirt saying "I had C-diff. Ask me how!" But I still feel like it isn't enough.
This is my first post. I'd like to thank everyone involved with this site. It is an amazing thing.
Florastor, Culturelle, yogurt, KEFIR, 40 gallons of Pedialyte (could have bought stock), 2 LONG rounds of Vanco (at my request), 4 clueless doctors and seven months of relapse. C-diff free for six months.
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Dyngo
- Brand New Poster
- Posts: 2
- Joined: Tue May 01, 2007 9:52 pm
Sheila,
I forgot to say congratulations! It took a long, long time for it to sink in for me that it wasn't necessarily coming back. I will probably always think of myself as a C-differ.
I forgot to say congratulations! It took a long, long time for it to sink in for me that it wasn't necessarily coming back. I will probably always think of myself as a C-differ.
Florastor, Culturelle, yogurt, KEFIR, 40 gallons of Pedialyte (could have bought stock), 2 LONG rounds of Vanco (at my request), 4 clueless doctors and seven months of relapse. C-diff free for six months.
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Sheila1
- Long Time Contributor
- Posts: 468
- Joined: Sat Aug 26, 2006 4:04 pm
Dyngo,
When it really hit me just how little the general medical field knew about cdiff was when I read an RN posting on a nursing site - she had acquired cdiff and was very ill, she said "up until I got it, we all (fellow workers and doctors) thought it was 'just diarrhea'" It is far more than that with far and deep reaching effects; physically, emotionally, and psychologcially - and it effects the whole family.
I still have days when a symptom or two makes me wonder "uh oh, is it coming back...?" I don't panic, but there's still the sudden intake of breath on occasion... I'm sure that will eventually get better too.
SO glad you are feeling better too and helping to spread the word!
When it really hit me just how little the general medical field knew about cdiff was when I read an RN posting on a nursing site - she had acquired cdiff and was very ill, she said "up until I got it, we all (fellow workers and doctors) thought it was 'just diarrhea'" It is far more than that with far and deep reaching effects; physically, emotionally, and psychologcially - and it effects the whole family.
I still have days when a symptom or two makes me wonder "uh oh, is it coming back...?" I don't panic, but there's still the sudden intake of breath on occasion... I'm sure that will eventually get better too.
SO glad you are feeling better too and helping to spread the word!
~Sheila
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