10 months since relapse

We spend a lot of time talking about the bad news in this discussion group - here's the spot for the good news. If you've had c-diff and are now well, please tell us about it here.
Benh
Contributor
Posts: 91
Joined: Tue Feb 07, 2017 5:36 pm

10 months since relapse

Postby Benh » Thu Dec 14, 2017 9:27 pm

So I have been waiting to post and was going to wait until I hit the one year mark to be sure I am clear but thought I would share my story in the spirit of the holidays and the hope that it may help some that are still dealing with this horrible disease. I got c diff after taking a 2-3 week course of augmentin for a sinus infection and then subsequently visiting my father in the hospital over a few weeks. When the er dr said c diff was confirmed I was in complete shock. It had been well over one month since I stopped the augmentin and I hadn't visited my dad in the hospital in over a week. They prescribed Flagyl but after 5 days I switched to vancomycin because of dizziness and other cognitive type issues. I finished a 10 day vancomycin cycle after the initial 5 days of Flagyl. I felt decent and the main symptoms were gone. Well, within 5 days, I had a violent relapse, much worse in terms of the fever and other symptoms. I started vancomycin again and my general dr said let's try 2 weeks. I wasn't happy with that and I researched here and met with an infectious disease dr and then a gi and they both agreed that a longer term taper was in order. I did 4x a day for 4 weeks, 3x a day for 3 weeks, 2x day for 2 weeks, 1x a day for 2 weeks, every other day for 8 doses and then every three days for 8 doses. It took a while, with my last pill taken on July 4th. I also was taking 2 florastor a day and drinking about 16 oz of kefir a day. I am still doing the kefir and the florastor now and likely will for some time. I have had many a day when I think it is back with going to the bathroom a lot and nausea but I have learned that I need to temper my food volume and stay away from any junk food. My diet has always been bland but I do like cookies and such. I have yet to have any dairy but plan to introduce it slowly soon. I haven't gained any of my weight back yet, having lost about 15% of my body weight. I also continue to have gastritis and have been trying to manage with my diet. I have recently had a endoscopy and colonscopy (done due to inability to gain weight) and all looks good except the gastritis. The dr thinks the gastritis is stress induced. In sum, I continue to struggle with the gastristis and bad days as well as the emotional impacts but I can say that the long term taper as well as the florastor and kefir seemed to work very well for me. This site was a godsend for me between the support and the information. Thank you all! I wish those that are still going through this all the best and try to stay positive and realize this will get better.

Return to “Success Stories”



Who is online

Users browsing this forum: No registered users and 2 guests