FMY after multiple rounds of antibiotics

We spend a lot of time talking about the bad news in this discussion group - here's the spot for the good news. If you've had c-diff and are now well, please tell us about it here.
merryb
Brand New Poster
Posts: 1
Joined: Thu Aug 13, 2015 5:13 pm

FMY after multiple rounds of antibiotics

Postby merryb » Thu Aug 13, 2015 5:29 pm

Hi - am new to this list. After 4 rounds of treatment for c-diff, I had a FMT just two days ago. The change is close to miraculous - energy up, bloating somewhat down, and I just feel more close to normal than for months. I hope this becomes a more routine procedure - it cant be more expensive that the multiple rounds of really expensive antibiotics! Thanks for all the posts on how to prevent recurrence - will be following faithfully.
Here is the current regime: lots of probiotic things: probiotics of course, kefir, raw sauerkraut, kimchi, and a mixture with colostrum to help coat and heal the GI tract. And am avoiding all the things good gut flora dont like - sugar, alcohol, refined everything ...

Lisa33
Long Time Contributor
Posts: 2430
Joined: Mon Sep 29, 2014 1:45 pm

Re: FMY after multiple rounds of antibiotics

Postby Lisa33 » Thu Aug 13, 2015 6:56 pm

STANDARD INTRODUCTION:
Welcome to the site. Read the first forum “All Users Read This First” and subtopics “Site History” and “Information and Guidelines for Posting to our Discussion Boards.” (Note limits on posting.) This will guide you in using the site and answer some of your questions. Read Dr. Borody's articles. Also see the topics under “CDI” – particularly Recent CDC Report, C. diff. Bible, Tests, Antibiotics, Hygiene, and Nutrition.
“Doctors” lists physicians our posters recommended and also a worldwide list of C. diff. specialists with contact information. (Many perform FMT's.) See the forum “FMT’s and FE’s” or “Media Reports” for new information on C. diff.
The majority of patients (about 70%) recover with one to two rounds of Flagyl, vancomycin, or Dificid. An unfortunate small percentage doesn’t and can suffer for months. Most recover unless there are factors such as advanced age or other severe health problems. New treatments include FMT's, which have a high cure rate. Other drugs and treatments are in the pipeline, and there is increased recognition of C. diff. 20l6 will be a year of many advances and HOPE.
Help us make others aware of C. difficle – which will lead to further advances in treating and/or preventing the infection. If antibiotics contributed to your C. diff, be careful about taking them. Some people tolerate them; some develop C. diff again. Don’t take medications for C. diff. unless you are tested.
For more information, see other support groups including http://www.peggyfoundation.org, Clostridium Difficile Infection (CDI) Support Group, FMT Discussion, Fecal Transplant Foundation, C Diff Foundation, and the UK Support Site. There is also information on some of the better medical sites like Mayo's, Medscape, and WebMD, and the CDC website. Don't use "Dr. Google" to diagnose yourself.
This is a support site not a medical site. We can’t give you medical advice but can tell you what worked for us and offer support. The best protection for you and others is thorough hand washing (soap and water are preferable) and good hygiene by you, those around you, and your health care providers.
No one will understand what you are going through except someone who has/had this unpredictable disease. All of our moderators and frequent posters had/have C. diff. (or a loved one with it) and know how physically, emotionally, and financially disabling it is.
Again, welcome. Remember, the odds are in your favor. (End of letter.)

Here is the official welcome letter, but you are already in recovery! Thank you for posting! I am so glad that you are feeling good after your FMT. 4 rounds of treatment is a lot. It probably will take some time to heal and get back to "normal", but it seems like you are on your way. I wish you continued improvement and thank you for posting to give others hope who are struggling with relapses that they will be cured!

Lisa

Bobbie
Administrator
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Joined: Sat Aug 06, 2005 8:00 pm

Re: FMY after multiple rounds of antibiotics

Postby Bobbie » Thu Aug 13, 2015 11:56 pm

Merryb,
Check with the doc who did your FMT about probiotics. Some experts advise patients not to take them so they will not conflict with the good bacteria from the FMT. Instead, they stress high fiber foods to feed the new bacteria. Check the FMT forum for more info and a list of posters who had FMTs and agreed to answer questions about their procedures. I have read fermented food are good, but, again, check with the doc.

I had a FMT three years go and the doctor recommended fiber and no probiotics, Of course, every doc is different.

Glad the FMT worked for you - it has a high cure rate.

seekingcure
Long Time Contributor
Posts: 1907
Joined: Mon Mar 25, 2013 1:28 am

Re: FMY after multiple rounds of antibiotics

Postby seekingcure » Fri Aug 14, 2015 12:48 am

Glad to hear the FMT has caused an improvement for you. I had FMT in June this year and my doctor advised no commercial probiotics for at least a month, but said that fermented foods were fine. Check with your doctor, as Bobbie advised, as they all have differing opinions. Hope you continue to improve and this is the end of c-diff for you.
Bea


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