Sorry you are going through all of this, it can wreak havoc emotionally and unless one has walked in these shoes, its difficult to understand. I would agree with your GI on waiting if things seem to be slowly improving. Testing can so often get people in a terrible cycle. I never did test through relapses and went by symptoms, looking back I am glad I did it that way. I did not have an FMT but post Dificid taper I did test about 6 wks out when I was sure it was back after having 3 days of D with alot of pain, I was shocked when it was negative.
I went very slow on the diet and things I used to eat seem to cause me alot of problems, fruit, salad caused me a great deal of issues. The food diary is perfect, I did one and it helped a great deal. I would try a tiny amount of Peanut better, wait a day and then try a bit more. It's a slow process and I am still tired of chicken although that is mainly what I eat! I found using a crockpot there are various ways to add things to chicken using chicken stock. I started with potatoes, then carrots and eventually green beans.
If things slowly improve but you still have IBS symptoms, remember there are medications that can help. I took Levsin which helped me get through this. Check with your GI
Hopefully things will slowly improve, sometimes its 3 steps forward, 1 step back but you will get there
NanciT
8 days following FMT, just ready to feel better
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Re: 8 days following FMT, just ready to feel better
Thanks NanciT, peanut butter has worked well so far. It’s been 2 weeks and 1 day since my FMT and I feel like I’m improving ever so slightly each day. After having those episodes last week and being in severe pain, I cut myself down to an extremely bland diet and have been adding things one at a time every day. Still keeping my food journal. I am able to eat toast with a little butter or peanut butter on it, English muffins with a little butter on it, boiled egg noodles, plain Cheerios, Lipton noodle soup, baked potatoes with a little butter and salt, graham crackers, peanut butter and jelly sandwiches, roasted chicken, Rice Krispies with the rice milk (think I may try with almond milk soon), I made a soup with chicken bone broth, chicken, egg noodles and potatoes last night, and I tried a very small amount of decaf coffee this morning (so far so good). I added in a tsp of benefiber yesterday to a glass of water and it actually really seemed to help with the mucus. I did another tsp again today. I will slowly up it if I do well on it. My BM’s are still mushy and not formed most of the time but the abdominal pain has greatly diminished with the absence of the mucus.
I was able to wake up yesterday morning, get ready and take my son to preschool and take my daughter to an appointment without full on fear. I see glimpses of my normal life reappearing and it gives me hope that there is an end to this somewhere. Praying I stay on the path of healing and no relapses this time.
I was able to wake up yesterday morning, get ready and take my son to preschool and take my daughter to an appointment without full on fear. I see glimpses of my normal life reappearing and it gives me hope that there is an end to this somewhere. Praying I stay on the path of healing and no relapses this time.
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Re: 8 days following FMT, just ready to feel better
Sounds like you are improving, I ate a very similar diet for a long time. I moved on to things like Chicken made in a crock pot with Carrots and green beans that are really cooked well. Sometimes I would add potatoes.Cooked all day...actually turned out very good. Everything you listed is what I did and then slowly added foods. The gut needs to heal. Small steps...you may have an off day, try not to panic. Its a process of recovery
You WILL get there!!
NanciT
You WILL get there!!
NanciT
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Re: 8 days following FMT, just ready to feel better
I did the same. Feel better!
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Re: 8 days following FMT, just ready to feel better
I added eggs today and seem to do fine. Anyone have any other suggestions on what to add next? I was thinking boiled carrots to try and get a veggie in there finally. I’m kind of at a loss as to what to try now. I guess I could try like a white fish or something too. I also have a spaghetti squash here I was thinking about possibly trying to make. I just don’t want to push it too much since I’ve been feeling good but it’s so tiring eating this diet. I also haven’t tried bananas yet or applesauce since I cut back to my extremely bland diet. My mom called me and said that she made me homemade applesauce.
Has anyone had a good or bad experience with Parmesan cheese? I haven’t tried any dairy yet besides butter but I’ve been wondering if I could sprinkle a little on my noodles...or is that playing with fire? Hahaha! I literally have a completely normal appetite so I want to eat everything but i know I can’t. It’s so hard.
Has anyone had a good or bad experience with Parmesan cheese? I haven’t tried any dairy yet besides butter but I’ve been wondering if I could sprinkle a little on my noodles...or is that playing with fire? Hahaha! I literally have a completely normal appetite so I want to eat everything but i know I can’t. It’s so hard.
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Re: 8 days following FMT, just ready to feel better
I do ok with applesauce, but not bananas. Boiled carrots and zucchini are ok for me too. Actually, I steam them until they are soft. Baked potatoes or rice. I also eat boiled potatoes and now mashed, but not in the beginning. I make creamed spinach using rice milk.
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Re: 8 days following FMT, just ready to feel better
You can definitely try fish , it is very bland and easy to digest . I ate a lot of fish , grilled sea bass was my favorite with baked potatoes and steamed carrots and green beans on the side.
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Re: 8 days following FMT, just ready to feel better
My judgement is bad because I could tolerate basically everything while I was on Vanco. The food intolerances cake after my FMT and being off of the vanco. Last night I was extremely gassy and had some mucus for the first time since starting the benefiber but had a pretty formed, soft looking BM this morning which is so awesome! Yay me! Lol! So, I don’t know if the egg caused me to have a reaction with the gas and mucus? But it didn’t give me D so I don’t know.
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