I am 2 weeks out from 2 weeks of Vamcomycin. Went to my GI doc today and am even more confused. He seems to think that I might still have active C Diff. The symptoms that send me in for help initially are still the same symptoms that I have at this point (loss of appetite, nausea, belching, mild/moderate abdominal cramps, 5-6 small yet somewhat formed stool per day with LOTS of seed like objects in it) and are worse in the morning. The cramps and rumbling do keep me awake at night. I have never had watery D or blood throughout this 3 months long process. Would you re-test and take a Vanc taper if re-test is positive or pay big bucks for Dificd with these sxs OR should I assume it's IBS and just stay the course with probiotics and cholestytamine?
Thank you so much in advance for any and all advice. C Diff is horrible and I so appreciate the support!
Post-infection IBS or just C Diff..same symptoms
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Post-infection IBS or just C Diff..same symptoms
Last edited by mka on Wed Jul 05, 2017 8:07 pm, edited 1 time in total.
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Re: Post-infection IBS or just C Diff..same symptoms
Vanco never did much for me and I wound up having FMT. Dificid does have an assistance program - the information is listed on the site in the CDI section. I probably would look into that if I was going to treat. But, I definitely wouldn't take any meds unless I had a positive test.
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Re: Post-infection IBS or just C Diff..same symptoms
Thanks Beth! If Vanco didn't do the trick for you did you bother to take it or any other antibiotic before the FMT? I was thinking I might just try a home FMT if I come back positive but am unsure if it would work if I didn't pre-treat with antibiotics.
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Re: Post-infection IBS or just C Diff..same symptoms
Yes, I did take vanco before the FMT originally, but I have done home FMTs without using any antibiotics. Sometimes just Pepto Bismol. Sometimes nothing. Depends on the symptoms.
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Re: Post-infection IBS or just C Diff..same symptoms
At this point it can be IBS or a very mild Cdiff infection but you need to get tested first to make sure , you do not overtreat. Home enemas are a good idea but they need to be done under a doctors supervision with a tested donor and , usually a course of antibiotics is needed prior to the infusion, also a cleanse to make sure you got rid of the pathogenic bacteria.
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Re: Post-infection IBS or just C Diff..same symptoms
Thank you both so much for your advice. We are headed out of town today (of course I am so nervous and am praying that I can enjoy myself and my kids on our family vacation) and guess I will get tested when I get home. Keep telling myself it could be worse and this will eventually come to an end.
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