That vulnerable feeling place...

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notheidi
Regular Contributor
Posts: 266
Joined: Sun May 17, 2015 11:24 am

That vulnerable feeling place...

Postby notheidi » Mon Aug 08, 2022 7:26 pm

Finishing up 14 day course of vanco today. I have asked my MD to check with infectious diseases whether I should be on vanco taper & pulse (really? this is the third recurrence, is it even a question?). We are supposed to hear back from them tomorrow, but in the meantime I will be not taking any. I'm not sure if that will affect the quality and results of the taper, if that is what they recommend. I have 10 extra vanco pills because my doctor prescribed them since I lost one of them, and am wondering if I should just start the taper/pulse given that's what they will likely recommend anyway? But I don't want to incur my doctor's wrath either.

Honestly I just hate the way I feel right now. I feel very emotional and crummy. Just in the hoping/waiting game, kind of terrified. Also exhausted from the emotions at the MD today and going tomorrow to recement temporary crown. Just exhausted. Low on resilience. And dread. The feeling I feel is dread.

It's nice to see treatment guidelines changing/moving along a little bit since I last had c diff 7 years ago. Dificid and FMTs have increased in popularity, and there's a new monoclonal antibody in town (which I did not get, but whatever).

Thanks for being there. It means a lot that there are people out there who understand and care.
2010 mod/sev w/leukocytosis, cefdenir-sinus inf, metro rx'd wrong, resurged during tx. recovered w/dose change, lost 40 lbs. 2015 mod recur fr SNF, no abx, resolved w/vanco. 7/2022 mod recur, community acq, no abx, intermittent prodrome but didn't realize

notheidi
Regular Contributor
Posts: 266
Joined: Sun May 17, 2015 11:24 am

Re: That vulnerable feeling place...

Postby notheidi » Tue Aug 09, 2022 12:02 am

I heard back from the infectious diseases specialist that my doctor consulted. They said that if the episodes are years apart then they are considered separate episodes and I do not progress to the next escalation in the treatment protocol unless I get a true recurrence, ie reinfection within a shorter period of time, indicating the original infection has repopulated. If that happens, I can be considered for dificid, vanco plus monoclonal antibodies, FMT, etc. So it *does* look like I may be able to get dificid from my HMO at some point if needed, as long as it's prescribed by the infections diseases specialist.

It is so nice to finally be talking to someone who knows what they're talking about. In comparison, my doctor also consulted GI and got a rather dismissive response.
2010 mod/sev w/leukocytosis, cefdenir-sinus inf, metro rx'd wrong, resurged during tx. recovered w/dose change, lost 40 lbs. 2015 mod recur fr SNF, no abx, resolved w/vanco. 7/2022 mod recur, community acq, no abx, intermittent prodrome but didn't realize


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