Saying Hello

Veteran support board users and new posters - use this forum to talk about whatever you want. Topics may be C. diff. related but are not required to be. Post here about posters' birthdays, holiday greetings, vacation plans, etc. If it doesn't fit in another forum, put it here.
notheidi
Regular Contributor
Posts: 266
Joined: Sun May 17, 2015 11:24 am

Saying Hello

Postby notheidi » Mon Nov 07, 2016 2:46 am

I haven't been on here in a bit and wanted to wave hello. I'm still doing ok! Afraid to write that because of superstition/PTSD. I had a second bout of c diff a year ago July.

I think of you all a lot. Lately I've been spending a lot of time on the restless legs syndrome board, which is a similar very high quality site. Unfortunately I was just diagnosed with Periodic Limb Movement Disorder of sleep. Kind of like RLS, but you do it in your sleep instead.

I found out I have this because I already knew I had sleep apnea, but I began taking off my mask in my sleep. So I had an in-lab sleep study done that determined that I am moving around a lot and waking myself up by doing that 48 times an hour, or something like that. Apparently when my legs get restless, I take off my mask. So I have been sleeping horribly on both accounts.

Anyway I'm going through the process of trying to find the right med for that.
2010 mod/sev w/leukocytosis, cefdenir-sinus inf, metro rx'd wrong, resurged during tx. recovered w/dose change, lost 40 lbs. 2015 mod recur fr SNF, no abx, resolved w/vanco. 7/2022 mod recur, community acq, no abx, intermittent prodrome but didn't realize

Lisa33
Long Time Contributor
Posts: 2430
Joined: Mon Sep 29, 2014 1:45 pm

Re: Saying Hello

Postby Lisa33 » Mon Nov 07, 2016 10:57 am

Ugh so sorry that you are dealing with these other issues now. On a positive note, at least you are a year away from the awful c-diff. I hope you figure out relief for the the restless legs and sleep apnea soon.

Thanks for checking in!
Lisa

notheidi
Regular Contributor
Posts: 266
Joined: Sun May 17, 2015 11:24 am

Re: Saying Hello

Postby notheidi » Wed Nov 16, 2016 1:50 am

Hi Lisa,

Thanks. Nice to hear from you. Hope you are doing well.
2010 mod/sev w/leukocytosis, cefdenir-sinus inf, metro rx'd wrong, resurged during tx. recovered w/dose change, lost 40 lbs. 2015 mod recur fr SNF, no abx, resolved w/vanco. 7/2022 mod recur, community acq, no abx, intermittent prodrome but didn't realize

Ril
Long Time Contributor
Posts: 1837
Joined: Sat Oct 27, 2012 2:45 pm

Re: Saying Hello

Postby Ril » Thu Nov 17, 2016 7:07 am

Good to hear from you.
It's too bad you have run into another problem but hopefully a solution will be found.
And great news staying c diff free!!!

Rita

Bobbie
Administrator
Posts: 12688
Joined: Sat Aug 06, 2005 8:00 pm

Re: Saying Hello

Postby Bobbie » Tue Jan 10, 2017 7:58 pm

Good to hear from you. Sorry to hear you have developed other problems. Some of us do - who knows if related to c diff or not.

Hang in there.

georgina
Long Time Contributor
Posts: 2635
Joined: Sat Sep 12, 2015 10:07 am

Re: Saying Hello

Postby georgina » Wed Jan 11, 2017 2:01 am

Hi , glad you are doing well GI wise but sorry you are dealing with another issue. Thank you for checking in!


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