Always Something

You can do it here... but no profanity, naming specific names, etc. Try to be constructive. Suggestions to improve the board or discussion forums are always appreciated.
Bobbie
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Re: Always Something

Postby Bobbie » Tue May 20, 2014 2:16 am

chinacherry,
Thx for the tip. Will look for the tea. You sound like a different person than the scared little girl who started posting and knew she would never get well. Congrats. I am so happy you are doing well.

getwellsoon
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Re: Always Something

Postby getwellsoon » Tue May 20, 2014 7:11 am

Bobbie, so thankful you got good news, now drink that water and keep voting lol.
CAROL

chinacherry88
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Re: Always Something

Postby chinacherry88 » Tue May 20, 2014 12:37 pm

youre welcome bobbie.You all were the best support I would ever have imagined since most people cant grasp this(even my doctor couldnt believe how awful I felt). There was a time when I thought Id never bounce back to normal shape but I did. You told me that there is life after cdiff and it was kindo my mantra for a long time. Wish we never get it again. Hope the tea works for you :). Take care.

seekingcure
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Re: Always Something

Postby seekingcure » Wed May 21, 2014 12:02 pm

Bobbie,
Glad you got good news on the UTI....finally. Wish doctor's offices wouldn't make us wait and worry so long!

Chinacherry,
Glad to hear you are doing so well now. You had a rough go of it!

Nancy,
Thanks for the info about the BCC. Glad to know I'll just need the topical antibiotic. Also glad it's on my shoulder and not my face. Shouldn't be much to it.

Beth,
Glad you finally seem to be getting to the bottom of your continued problems and have a treatment plan in place.

Carol and everyone else that has been hit with the stomach bug going around, hope it goes away soon.

I hope everyone can begin to enjoy the spring weather and hopefully make plans for a fun vacation this year! My happy place is the beach----any beach!
Bea

Bobbie
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Re: Always Something

Postby Bobbie » Fri May 23, 2014 1:36 am

If I didn't know better I'd say this was a site for hypochreodiacs. Just got over UTI scare and think I have pneumonia - headache, fever, combatant chest congestion and cough, shortness of breath (and I work out constantly). This happened to me on Memorial Day 1999. Was going to visit my mother in MT and instead wound up in hospital with pneumonia, Levaquin and 2nd bout of c. Diff. History often repeats itself with me.

And I am in that highly revered and cherished group: the elderly. And, of course, pneumonia is one of the main causes of death in the elderly.

Sick of sick and tired.

Bobbie
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Re: Always Something

Postby Bobbie » Fri May 23, 2014 1:40 am

Glad you have IBS and not c diff. Carol. IBS can be painful and have similar symptoms to c diff. But at least it's not c diff.

getwellsoon
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Re: Always Something

Postby getwellsoon » Fri May 23, 2014 6:32 am

Bobbie, Hopefully its not pneumonia but if it is you know the drill. I will pray for you today that you feel better. Let us know what the Dr. says. We really do sound like a bunch of hypochondriacs but we know better. I firmly believe our immune systems are compromised once we have the recurrent CDiff. Take care of yourself and hang in there.
CAROL

AllisS
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Re: Always Something

Postby AllisS » Fri May 23, 2014 8:59 am

What I've read is that a compromised immune system, e.g., from chemotherapy, is a risk factor for C. difficile. But I've not come across anything saying that having had C. diff causes a compromised immune system. In fact, the C. diff specialist whom I've seen in Boston maintains that people who are "cured" after one round of C. diff "develop immunity" to C. diff. I asked Dr. MacDonald of CDC if he agreed with the latter assertion; he said there "could" be immunity in some, but no one knows how to determine if it's present or how long it would last.

In other words, much controversy re: issues surrounding immune system but no meaningful data as of yet.
If your illness was preceded by use of a medication, e.g., an antibiotic, please fill out an FDA Adverse Event Report at http://www.fda.gov/Safety/MedWatch/default.htm

getwellsoon
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Re: Always Something

Postby getwellsoon » Fri May 23, 2014 11:13 am

Perhaps I shouldn't say compromised immune system but all I know is when I get a bug now it goes straight to the gut. I have all the symptoms of Cdiff again plus it throws my system off for weeks. So for me, my system is not the same, therefore I call it compromised. I was a person who never got sick, never had indigestion, never had D from antibiotics, Now, if I feel the least bit off, or run a fever I am thrown back 10 steps into raging reflux, D, M and feeling awful. God knows what will happen if I have to take an ATX. My system is not the same as it was pre CDiff, that I know for sure. Something sure feels compromised to me.
CAROL

seekingcure
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Re: Always Something

Postby seekingcure » Fri May 23, 2014 3:12 pm

I agree, Carol, I am definitely not the same since c-diff. As Roy suggested, all those months of antibiotics we had to take probably did affect our immune systems. Everything seems to hit me harder now and take longer to get rid of. I would imagine that those who were cured of c-diff with only one round of antibiotics were probably not as severely affected as those who had to take multiple or long courses of antibiotics. My ID is even concerned about my taking the Macrobid 50 mg. long-term like I am having to do to prevent the UTI's. He says anytime one has to take antibiotics for prolonged periods, the gut flora is compromised, which compromises the immune system.

Bobbie, I'm so sorry to hear you have been hit with yet another set back. Praying that it's not pneumonia. Bea
Bea

Bobbie
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Re: Always Something

Postby Bobbie » Fri May 23, 2014 5:55 pm

Thx, Bea. Waiting for call on X-ray. It's 4:52 office closes at 5:00 for weekend.

Oh, how I hare the waiting. First with my son and his infected teeth, then re. suspected UTI, and now this. My nerves are shot.

Bobbie
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Re: Always Something

Postby Bobbie » Fri May 23, 2014 9:07 pm

Nurse finally called at 6:00PM. Not pneumonia yet.,supposed to keep tractk of temp and coughing. Have growth on one luing -they want to see old x-rays other docs didn't send. Drove self to appointment altho husband offered to do so.Should have let him -so weak could hardly walk.Nurse finally came with wheelchair.,Too tired to type.

pinkangel
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Re: Always Something

Postby pinkangel » Fri May 23, 2014 9:52 pm

Sorry you are feeling bad Bobbie. Hopefully that URI does not get to the pneumonia stage. Take it easy and rest this weekend and hopefully your immune system can knock this out. I agree we all do seem like hypochondriacs here but everyone of us have been through one of the worst infections you can imagine. If we are not careful with our health we may end up with the horrible Cdiff again. As we get older things often hit us harder as well. It is great we can share our stories here so we can make better decisions in regard to our health. Some times it seems like it all hits at once. Praying for you and hoping you feel better asap.

Bobbie
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Re: Always Something

Postby Bobbie » Fri May 23, 2014 10:04 pm

Well, at least we have each other. I wish the best for everyone of you.

Nancy1
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Re: Always Something

Postby Nancy1 » Fri May 23, 2014 10:41 pm

Oh my gosh, Bobbie, you have really been through the mill! I have all my fingers and toes crossed that you don't get pneumonia. Not allowed! I agree that we are entitled to be worried about our health after cdiff -- I wouldn't call it hypochondria, just rational! We never know when an antibiotic, or even just exposure, will kick us into cdiff again. I'm in that highly revered and cherished group right with you, Bobbie. We all know how easily we can go from being well to being very sick. Hang in there.


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