Lynne,
I don't know anything about sueing, etc, but I noticed your location. I am also central Illinois. (Peoria) I'd like to find out who you are seeing (Dr) and if you have made any headway.
Linda
lindalu1000@yahoo.com
Boy am I mad!!!!
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Lynne
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i am in Champaign. A nurse practitioner in pulmonary med. is the one who rx'd 4or5 antibiotics within the last 6 months. At the end of feb she put me on omnicef for 3 weeks,plus oral antifungal for thrush. At that time I told her that I had something intestinal going on, that I was incontinent,"sharting" so to speak. I picked up my record of my visits to her and she didn't document that I mentioned that, though she documented everything else. I doubt that i could sue and I don't really want to, I'm just so disgusted that I got this that I want to blame someone. And the side effects to this flagyl are unspeakable! My gp's office act like they never heard of the effects I described, and acted as if I were psycho or something. What's your story?
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Marcia
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Bobbie
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Lynne,
Many of us have had the same experiences. Some docs. just don't want to admit they "goofed." Hard to prove, however, if it isn't blatant malpractice.
Some docs. seem to have the attitude, "If I can't 'fix' you, it must be you." Don't buy into it.
If you are having bad side effects from Flagyl, suggest Vancocin to your doc. Very expensive, however, so check your insurance. Sometimes it is more effective than Flagyl and has less side effects as it's not as systemic.
Many of us have had the same experiences. Some docs. just don't want to admit they "goofed." Hard to prove, however, if it isn't blatant malpractice.
Some docs. seem to have the attitude, "If I can't 'fix' you, it must be you." Don't buy into it.
If you are having bad side effects from Flagyl, suggest Vancocin to your doc. Very expensive, however, so check your insurance. Sometimes it is more effective than Flagyl and has less side effects as it's not as systemic.
Last edited by Bobbie on Thu Mar 16, 2006 9:35 pm, edited 1 time in total.
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Lynne
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Bobbie,
Counting today I have 4 more days of flagyl and am going to stick it out. I am going to buy the recommended probiotic regime and start that today. Fatigue and depression are the worst side effects right now. Reading my medical records has been a real eye opener. The subjective opinions of the doc and nurse practitioner are counter to what I expected. For example, I thought I was being cautious in starting a new medication, and it was interpreted by nurse as being noncompliant! I am not going to worry about litigation now if ever, I am just going to try to get over this. It means so much to have found this support group. It is like a port in a storm. Thank you!
Counting today I have 4 more days of flagyl and am going to stick it out. I am going to buy the recommended probiotic regime and start that today. Fatigue and depression are the worst side effects right now. Reading my medical records has been a real eye opener. The subjective opinions of the doc and nurse practitioner are counter to what I expected. For example, I thought I was being cautious in starting a new medication, and it was interpreted by nurse as being noncompliant! I am not going to worry about litigation now if ever, I am just going to try to get over this. It means so much to have found this support group. It is like a port in a storm. Thank you!
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Bobbie
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angelmom
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I guess I did not associate the fatigue or depression with the flagyl as the diarrhea tends to wipe me out and being sick as much as I have has had me super depressed.
I went in to see my GP today. I was 15 minutes late and they sent me home. I have more staph sores. I am scared to death. The staph goes crazy with me. Last time it ate into the deep tissue and was so horrible I would not leave the house. I finally ended up in the hospital and with the c diff. So, here I am back in the same revolving door. All I wanted was a referral to an Infectious disease doctor. After all I have a rare disease with a weak immune system to start with and have IV infusions. It's not like I am some hypochondriac who goes from doctor to doctor. I had asked for one the last time I was there and he poo-pooed it- said he could take care of it! Funny, my specialist at the University of Iowa and National Institutes of Health both think I should see one, but here i am jacking around with a GP who is twiddling his thumbs again. I called my GI doc to see if he would make the referral, but I have only seen him for the colonoscopy, but since I have had the c diff, I thought it was worth a try. So, let my face get totally messed up with sores and me get suicidal and end up with staph in my blood and eating my lungs again. And then back on mega anti-biotics and back to c diff and colitis.
Man am I tired of this.
Linda
I went in to see my GP today. I was 15 minutes late and they sent me home. I have more staph sores. I am scared to death. The staph goes crazy with me. Last time it ate into the deep tissue and was so horrible I would not leave the house. I finally ended up in the hospital and with the c diff. So, here I am back in the same revolving door. All I wanted was a referral to an Infectious disease doctor. After all I have a rare disease with a weak immune system to start with and have IV infusions. It's not like I am some hypochondriac who goes from doctor to doctor. I had asked for one the last time I was there and he poo-pooed it- said he could take care of it! Funny, my specialist at the University of Iowa and National Institutes of Health both think I should see one, but here i am jacking around with a GP who is twiddling his thumbs again. I called my GI doc to see if he would make the referral, but I have only seen him for the colonoscopy, but since I have had the c diff, I thought it was worth a try. So, let my face get totally messed up with sores and me get suicidal and end up with staph in my blood and eating my lungs again. And then back on mega anti-biotics and back to c diff and colitis.
Man am I tired of this.
Linda
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jennie
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Linda, this sounds crazy what is going on. With c-diff it is perfectly acceptable to see an ID doc, many of us do, and many GI docs work with the ID docs. This how tough cases of c-diff are now being treated, by two specialists, working in tandem. And with that staph infection! Can you not insist on a referral? You have two infections going on, and have to take antibiotics, and this GP is clearly way out of his depth! And sent you home!! Boy!
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diannestevens
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Hang in there Linda! I know it can be easier said than done but I have felt the same way you are feeling. Only I tried to end it all with an overdose of pills. I only ended up hurting my family and owing alot more money and still in the same boat. Sick and tired of being sick and tired and sick of uneducated doctors who think, like Bobbie said, if they cant fix you then it must be you. I've also been labeled a non compliant patient. That really scares you in a world where drugs are being over prescribed anyway. If all else fails, call your insurance company. I'm sure, like myself, you have been red flagged. And instead of them paying out all of this money to only temporarly fix the problem they would rather fix the problem for good. You can also make a formal complaint with your insurance company against that doctor and nurse practioner. They are contracted with your insurance company and they have certain guidelines that they must stay within to remain contracted with them. Couldnt hurt at this point. Take care and when you are down please come back to this site. It saved my life and sanity.
Dianne Stevens
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Knitter
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Bobbie
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C. diff. has to be one of the loneliest diseases in the world. Unlike other diseases, you don't want the share your symptoms with family, friends, and co-workers. It can drive you crazy.
When my son had C. diff. in l979, he was in and out of the hospital for weeks. My mother, bless her, came from MT to stay with me because my husband traveled constantly. Even my brother and his wife were great, and I had a wonderful neighbor and several supportive friends. BUT no one had heard of the disease. In l993, when I first got C. diff., things weren't much better. I was on a blind study for S. boulardii (now Florastor), and a nurse from Harborview Medical Center called me periodically to see how I was doing. She was one of the few people who knew what I had. I talked her ear off every time she called.
Who is the h . . . has ever heard of C. diff. ? Until now. There is finally progress both in the media and with new treatments. Several docs. (including Dr. Borody, Dr. Kelly, Dr. Allen, Dr. McDonald, & Dr. Karpa) are actively involved in solving the puzzle of C. diff. There is hope.
When my son had C. diff. in l979, he was in and out of the hospital for weeks. My mother, bless her, came from MT to stay with me because my husband traveled constantly. Even my brother and his wife were great, and I had a wonderful neighbor and several supportive friends. BUT no one had heard of the disease. In l993, when I first got C. diff., things weren't much better. I was on a blind study for S. boulardii (now Florastor), and a nurse from Harborview Medical Center called me periodically to see how I was doing. She was one of the few people who knew what I had. I talked her ear off every time she called.
Who is the h . . . has ever heard of C. diff. ? Until now. There is finally progress both in the media and with new treatments. Several docs. (including Dr. Borody, Dr. Kelly, Dr. Allen, Dr. McDonald, & Dr. Karpa) are actively involved in solving the puzzle of C. diff. There is hope.
Last edited by Bobbie on Fri Mar 17, 2006 1:31 am, edited 1 time in total.
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Marcia
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angelmom
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I swear my doctor looked at me like I was talking Greek when I said cdiff left spores. He said he had never heard of "spores".
This is my NEW doctor, the one i switched to AFTER my old one did not take my temp or prescribe antibiotics even though I have a port line and a rare disease and had sores that were not healing--turned out they were staph. She let them go so long they got into my blood and I almost died.
WHERE do you find a GOOD doctor??????????????????
Yea, I probably need IV vanco again, but he's going to make me take augmentin, which will probably not kick the staph and bring back the c diff. And then they wonder why you are depressed and have an attitude.
Linda
This is my NEW doctor, the one i switched to AFTER my old one did not take my temp or prescribe antibiotics even though I have a port line and a rare disease and had sores that were not healing--turned out they were staph. She let them go so long they got into my blood and I almost died.
WHERE do you find a GOOD doctor??????????????????
Yea, I probably need IV vanco again, but he's going to make me take augmentin, which will probably not kick the staph and bring back the c diff. And then they wonder why you are depressed and have an attitude.
Linda
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Bobbie
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He'd never heard of spores? Where has he been. Other diseases besides C. diff. have spores.
Could your docs. in Iowa recomend a local doc. for you? Sounds like you know more than your current one does. Copy Dr. Borody's article and take it to him.
Many of us with chronic C. diff. and other diseases have an "attitude." It's called the, "I know you are a doctor, but I live with myself and know my body best" attitude -- not appreciated by many in the med. field.
I used to be known as an "agreeable, pleasant" patient (sneaked a look at records), but doubt if I am still perceived that way.
No wonder you are depressed, Linda. Did you call the docs. in Iowa and ask about IV Vanco.? I'm no expert, but it's worth a call.
Could your docs. in Iowa recomend a local doc. for you? Sounds like you know more than your current one does. Copy Dr. Borody's article and take it to him.
Many of us with chronic C. diff. and other diseases have an "attitude." It's called the, "I know you are a doctor, but I live with myself and know my body best" attitude -- not appreciated by many in the med. field.
I used to be known as an "agreeable, pleasant" patient (sneaked a look at records), but doubt if I am still perceived that way.
No wonder you are depressed, Linda. Did you call the docs. in Iowa and ask about IV Vanco.? I'm no expert, but it's worth a call.
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