Anyone heard of an infusion called ZINPLAVA

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Clberg
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Joined: Mon Oct 05, 2020 11:37 am

Anyone heard of an infusion called ZINPLAVA

Postby Clberg » Mon Oct 05, 2020 12:01 pm

I have been battling CDiff for over 10 years. The past year has been the worst ever. I have been on Vancomycin and just finished Dificid. I can’t get this CDiff to go away. My dr just suggested an infusion that’s very new. It scares me to death to think about doing something so new with very scary side effects. Anyone have any information on this infusion? Or have had any positive results?

roy
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Joined: Sat Aug 02, 2014 1:05 am

Re: Anyone heard of an infusion called ZINPLAVA

Postby roy » Mon Oct 05, 2020 12:47 pm

Do you mean you have copious watery D 3 times or more a day and its lasted 10 years?

NanciT
Long Time Contributor
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Joined: Thu Sep 18, 2014 12:01 pm

Re: Anyone heard of an infusion called ZINPLAVA

Postby NanciT » Mon Oct 05, 2020 4:52 pm

I am just getting through a Dificid taper and I have an Infectious Disease Specialist that I see. I had CDIFF in 2014/15 and recovered after months of treatment at the time. I also saw 3 GI's.

My current ID doctor did mention this to me due to the fact I was so ill 5 years ago and now have it again. I was in the hospital and did get IV antibiotics before coming down with CDIFF this time.

I read through the side effects and complications of Zinplava, my understanding is it is not a treatment but an infusion given up to 6 months after treatment. At this time I am not going to consider this and I have not found any reviews on it, just the information on the study.

NanciT

Footie97
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Joined: Fri Sep 25, 2020 3:51 pm

Re: Anyone heard of an infusion called ZINPLAVA

Postby Footie97 » Sun Nov 01, 2020 7:17 am

I am on a long taper of Vanco right now. I have been actively battling C Diff for 5 months. I was recently hospitalized for failed outpatient treatment for CDI. I know that I have been + for c diff for a relatively short period of time but I have lost significant amounts of weight in my battle.

My ID and GI have recommended Zinplava if I fail with long Vanco taper since FMT is available only in “emergency” cases due to COVID. I have read the studies and will consider. Luckily my GI was involved with OpenBiome since it’s inception and I have been approved for FMT if I fail.

As with all newer treatments of any disease, do your research and ask lots of questions and make the decision that is best for you!

Good luck and let us know how you are doing


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